June is here – and so is Myasthenia Gravis Awareness Month!
What is Myasthenia Gravis you say?
Myasthenia Gravis (MG) is an autoimmune neuromuscular disorder characterized by weakness and rapid fatigue of any of the muscles under your voluntary control. MG is caused by a breakdown in the normal communication between nerves and muscles.
So now that we’re a little more acquainted with MG, how can we help spread the word about this rare disease? See some resources below, courtesy of the Myasthenia Gravis Foundation of America (MGFA)!
Join a or tell someone you know with MG about a support group!
Support groups help people to not feel so alone in their diagnosis and provide support, education, and mutual aid. Click here to find a support groups in your area!
2. Join or start an MG run!
The MG Walk Campaign is dedicated to creating awareness, renewing hope, and generating a network of community and support, while raising funds. It also serves as community event to get people together to share and their journey with MG. Click here to get more info!
3. Read about patient stories
Rare disease are just that – rare! So sometimes it feels like you’re the only one who is going through what you’re going through. Therefore reading stories from others who have been diagnosed with MG can really make a difference! Click here to read.
4. Watch informational videos
The MGFA has links to their conference talks and presentations that provide some really great information. Topics include “Becoming a Take Charge Patient: Being Prepared for Emergencies,” “What’s Happening Now in MG Research,” “Tackling Insurance Issues,” and more! So click here to get access to the above and more!
So throughout June – and all year long! – share this post or send along to anyone who could it!