The clinical research process is a thorough and time consuming method in which new drugs, therapies, and medical devices are rigorously tested before being made available to the public. Through clinical trials, which test the effectiveness and safety of experimental products, scientists, researchers, and regulatory agencies such as the US Food and Drug Administration can get an idea of how effective and safe the product could be.
Limited Treatments For Rare Disease
Many rare diseases have few or no real treatment options. Many rare diseases can only be treated on a symptomatic basis. This means that there are drugs that can help reduce the suffering of the patient, but do not actually have a chance of curing a disease or stopping or slowing its progression. For others, some patients simply do not respond effectively to the limited treatment options available.
The Best Chance For Treatment
If you are a rare disease patient who is running out of useful or practical treatment options, participating in a clinical trial that is testing a new therapy for your disease might be your best bet. However, it is important to learn more before trying to seek out a clinical trial to join.
What Clinical Research Means To You
A great way to do this is to sign up for a free, hour long webinar titled “What Clinical Research Means To You.” This online informative session is scheduled for October 10th, 2018 from 12-1pm EDT. This session will explain the clinical trials process in detail, explain the possible risks and benefits that a rare disease patient could experience by participating, and discuss other relevant information, such as rules and safety protocols.
About The Center for Information & Study on Clinical Research Participation
This webinar is hosted by the Center for Information & Study on Clinical Research Participation (CISCRP). This is a non-profit organization which is committed to informing the public about the clinical research process, focusing on patients, government officials, the media, and medical research communities. All of these groups have a role to play in the clinical research process. With this task in mind, the CISCRP hopes to make the clinical research process as effective as possible and allow patients to make informed decisions.
Click here to learn more about the activities of CISCRP.
To sign up the for the webinar, click here.