Motor Neuron Disease Research Drive Underway with £50,000 Donation
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Motor Neuron Disease Research Drive Underway with £50,000 Donation

According to an article from The Herald, Scottish Rugby legend Doddie Weir's My Name'5 Doddie Foundation has contributed £50,000 towards pre-clinical development of a drug to treat motor neuron disease.…

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Experimental Gene Therapy Earns Orphan Drug Designation for Phenylketonuria
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Experimental Gene Therapy Earns Orphan Drug Designation for Phenylketonuria

According to a story from einnews.com, the cell therapeutics company American Gene Technologies (AGT) has recently announced that the US Food and Drug Administration (FDA) has granted Orphan Drug designation…

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Help Find a Rare Blood Donor for Toddler Battling Neuroblastoma
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Help Find a Rare Blood Donor for Toddler Battling Neuroblastoma

The Washington Post reports a gripping story of a family struck by a rare disease diagnosis, but also a heartening story of a global community coming together to support them…

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Rare Disease Drug Costs Evaluated by Organization’s Interpretation of Your Quality of Life
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Rare Disease Drug Costs Evaluated by Organization’s Interpretation of Your Quality of Life

In the UK, a think tank determines access to rare disease drugs based on their perception of an individual's quality of life. That idea has also been developed in the…

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Potential New Treatment for Amyotrophic Lateral Sclerosis which Doesn’t Require Swallowing!

Amyotrophic lateral sclerosis (ALS) is a condition which affects the bodies nerve cells. It's neurodegenerative and progressive, causing the patient muscle weakness and muscle atrophy. It eventually results in paralysis.…

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A New Combination of Therapies has Potential to Treat all Mantle Cell Lymphoma Patients
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A New Combination of Therapies has Potential to Treat all Mantle Cell Lymphoma Patients

Mantle cell lymphoma is caused by a genetic mutation which  produces cancerous white blood cells. Of course, these are the cells which fight infection in a normal body. Therefore in…

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Scientists Develop New Approach to Study a Dangerous Form of Ovarian Cancer
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Scientists Develop New Approach to Study a Dangerous Form of Ovarian Cancer

According to a story from Stanford News, a team of researchers affiliated with Stanford University have successfully developed a new technique for studying high-grade serous ovarian cancer, which is one…

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