New Method of Infusion for Primary Immunodeficiency Could Improve Patients; Quality of Life
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New Method of Infusion for Primary Immunodeficiency Could Improve Patients; Quality of Life

A New Study A new study, conducted by CLS Behring, has found that a new method of administration for Hizentra as a treatment for primary immunodeficiency (PI), could improve quality…

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Orphan Drug Designation Provided to a Treatment for Chronic Inflammatory Demyelinating Polyneuropathy
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Orphan Drug Designation Provided to a Treatment for Chronic Inflammatory Demyelinating Polyneuropathy

The FDA has just provided Orphan Drug Designation to Hizentra for the treatment of adults diagnosed with chronic inflammatory demyelinating polyneuropathy (CIPD). This is a maintenance therapy which works to…

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A Man with CIDP Slid 400 Feet Down the New River Gorge’s High-Line in a Wheelchair.
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A Man with CIDP Slid 400 Feet Down the New River Gorge’s High-Line in a Wheelchair.

As originally reported in WWVA, West Virginian Sib Weatherford spent one afternoon this fall doing what nobody though possible: he slid 400 feet down the New River Gorge's high-line in…

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Grant From The American Neuromuscular Foundation Will Focus on Chronic Inflammatory Demyelinating Polyneuropathy
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Grant From The American Neuromuscular Foundation Will Focus on Chronic Inflammatory Demyelinating Polyneuropathy

According to a story from newswise.com, the American Neuromuscular Foundation has recently awarded a grant to Dr. Karissa Gable. This grant will go towards a research project headed by Dr.…

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Medical Student Keeps Pursuing Her Dream with CIDP and CRPS
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Medical Student Keeps Pursuing Her Dream with CIDP and CRPS

According to a story from National Pain Report, Jill Konowich was well on her way to becoming a medical doctor. She was studying at the Rutgers New Jersey Medical School.…

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Duke Neurologist Receives Grant to Investigate Origins of Chronic Inflammatory Demyelinating Polyneuropathy
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Duke Neurologist Receives Grant to Investigate Origins of Chronic Inflammatory Demyelinating Polyneuropathy

According to a publication from Duke University, Dr. Karissa Gable, a neurologist at the University, has received a one-year research grant from the GBS|CIDP Foundation International to study the activity…

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Congressmen Introduce Bill to Help Chronic Inflammatory Demyelinating Polyneuropathy Patients and Others
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Congressmen Introduce Bill to Help Chronic Inflammatory Demyelinating Polyneuropathy Patients and Others

According to a story from the website of Oregon rep Earl Blumenauer, Blumenauer (D-OR) along with fellow congressmen George Holding (R-NC) and G. K. Butterfield (D-NC) have introduced a bill…

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Helpful Resources for CIDP Patients
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Helpful Resources for CIDP Patients

Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare disease that affects the nervous system. It causes peripheral nerves and nerve roots (the sites where nerves are attached to the central…

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Why is it Difficult to Diagnose Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)?
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Why is it Difficult to Diagnose Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)?

According to a story from WebMD, the rare nervous system disorder chronic inflammatory demyelinating polyneuropathy is notorious for being difficult to diagnose. Many rare diseases can be challenging to identify.…

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Chronic Inflammatory Demyelinating Polyneuropathy Didn’t Stop This Woman From Finishing Her 11th Chicago Marathon
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Chronic Inflammatory Demyelinating Polyneuropathy Didn’t Stop This Woman From Finishing Her 11th Chicago Marathon

According to a story from ESPN, there were times when Lynn Rogers wasn't sure if she was going to be able walk, much less run, ever again, but she wound…

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After a Dangerous Accident and CIDP, a Girl Shows her Courage
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After a Dangerous Accident and CIDP, a Girl Shows her Courage

According to a story from the Chillicothe Gazette, twelve-year-old Brooke Hopkins has already had to face chronic inflammatory demyelinating polyneuropathy and a devastating injury in her young life. However, through…

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The FDA Just Approved a New Maintenance Therapy for Chronic Inflammatory Demyelinating Polyneuropathy
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The FDA Just Approved a New Maintenance Therapy for Chronic Inflammatory Demyelinating Polyneuropathy

According to a story from raredr.com, The U.S. Food and Drug Administration (FDA) has recently approved Hizentra as a maintenance therapy for patients with chronic inflammatory demyelinating polyneuropathy. Hizentra is…

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Although CIDP Cut Teen’s Life Short, Her Passion Shines On
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Although CIDP Cut Teen’s Life Short, Her Passion Shines On

Even in the most trying circumstances, Caitlin Ronan, a teenager in England, leveraged everything in her power to help others. After several years in the hospital, battling a progressive rare…

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CIDP Treatment Shows Evidence of Progress in New Study
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CIDP Treatment Shows Evidence of Progress in New Study

Earlier this month, The Lancet Neurology published results from its PATH study (Polyneuropathy And Treatment with Hizentra), which showed efficacy in treating people with chronic inflammatory demyelinating polyneuropathy (CIDP). Great news and hope…

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Seattle Police Officer Saved by the People He Served for a Quarter Century
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Seattle Police Officer Saved by the People He Served for a Quarter Century

For 26 years, police officer Dave Clement, put his life on the line every day for the people of Seattle. He often worked with the poorest of the poor, helping to…

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