The Advisory Committee on Heritable Disorders is hosting a webinar on September 24, as part of its mission to reduce morbidity and mortality in newborns and children who have, or are at risk for, heritable disorders.
This is a great resource for many in our rare disease community — particularly for those in the tyrosinemia community, considering September is Tyrosinemia Awareness Month!
The Committee recommends that every newborn screening program include a Uniform Screening Panel that screens for 35 core disorders and 26 secondary disorders.
If you’re interested, please see details below!
WHEN: Tuesday, September 24, 2019 from 9:30 a.m. to 12 p.m. EASTERN TIME
DEADLINE: You must register by Monday, September 23, 2019 by 12 p.m. EASTERN TIME
HOW TO REGISTER: Click here to get all the info you!