Boo!
We hope everyone’s trick or treat bag was heavy on Reese’s this year! This week we’re highlighting stories about a youth advocate, gene therapy, and a multiple sclerosis predictor. Also, among all the candy and treats of Halloween, we have an article about eating when you have FCS.
Sit back and enjoy this week’s editor’s choice.
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11 Year Old Aims to Spread Awareness about Primary Pulmonary Hypertension, a Rare Disease That has Ravaged Her Family
You’re never too young to advocate for the rare disease community!
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Dieting with Familial Chylomicronemia Syndrome
If you have FCS, moderating your diet is crucial. Here are some tips.
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Michigan Researchers to Study Neurofilament Light Chain Blood Levels as a Predictor of Multiple Sclerosis
How do you know if you’re at risk for MS? These researchers shed light on that question.
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First Patient to Receive Gene Therapy in a Phase 1/2 Study of ACTUS-101 in Patients with Pompe Disease
Many from the Pompe community have been waiting to hear an update on gene therapy– and now researchers are one step closer.
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