LETHBRIDGE — A Taber, Alta., man is calling on government to take action and help grant Canadians with cystic fibrosis better access to breakthrough treatments. Marten Devlieger was diagnosed with CF when he was two-years-old. CF is a fatal, genetic disease that affects the lungs and digestive system. More than 4,300 Canadians suffer from the disease. The median age of survival is 52 years.
Canadians with cystic fibrosis being denied access to life-changing drug, Taber man says
Rose Duesterwald
Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.
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