During the beginning stages of COVID-19, there was a common refrain: “It’s no big deal. It’s just like the flu.” But just a few months into this global pandemic, we can already see the differences – and the toll COVID-19 has had on citizens, medical personnel, and survivors alike.
As of June 29, there are 10.2 million diagnosed cases worldwide, with 503,000 deaths. An estimated 80% of patients will recover without any serious side effects. But, says ICU nurse Shari PerrySmith:
COVID 19 is the worst disease process I’ve ever worked with in my 8 years as an ICU nurse.
When they say “recovered” they don’t tell you that that means you may need a lung transplant. Or that you may come back after d/c with a massive heart attack or stroke bc COVID makes
— Cherie Antoinette (@sheriantoinette) June 14, 2020
Her tweet quickly picked up steam, with a growing number of responses sharing their experiences with COVID-19. From permanent organ damage to chronic fatigue felt by “long haulers,” the impact of COVID-19 might be longer-lasting, more intense, and more harmful than we ever thought.
As reported in Chron, here are some of the responses from patients who survived COVID-19.
Untold Stories
COVID-19 Related Organ Damage
According to 29-year-old Dan:
I’m currently in the hospital after having a heart attack caused by clotting that resulted from COVID-19. I have a stent in my heart and need to wear a heart monitoring vest at all times.
Professor Beverly Hunt explained that blood clots are common in severe coronavirus cases because the blood becomes exceptionally sticky. These can lead to deep vein thrombosis, pulmonary embolisms, and strokes. Heart attacks are also becoming more common for younger patients with COVID-19, leaving them with life-long organ damage.
Similarly, both 23-year-old Laney and 24-year-old Alicia, who are 8-12 weeks out from their diagnoses, still experience chest pain and shortness of breath. According to Laney, her lung damage is irreversible.
Respiratory Distress
I'm just getting over a "mild" case after over two months. There's scarring in my lower right lung and my stomach and digestion are a mess like never before. But I'm coughing way less and can take walks again.
— yeah it's Eli (@OhGreatItsEli) June 14, 2020
While my symptoms were mild, he nearly had to be admitted because he couldn’t breathe and now, a month after he’s recovered, we’ve discovered that he has permanent lung damage. This is not “just the flu.” It isn’t.
Unknown COVID-19 Symptoms
After “recovery,” some patients are grappling with strange and uncomfortable symptoms. Melly B. notes that she has chronic pain, difficulty urinating, and lower extremity inflammation. Stephanie McCarroll, whose condition requires dialysis, developed asthma, an irregular heartbeat, chronic fatigue syndrome, and a chronic cough.
Everybody is so swollen their skin has blisters and [is] weeping clear fluid and has sores and the skin just slides off.
Ultimately, as this pandemic continues, patient experiences need to be taken into account for treatment development.