On April 20, 2023, the Rare Disease Legislative Advocates (RDLA) hosted its monthly webinar. These webinars help provide updates to the rare disease community on legislation and other policy initiatives…
The coronavirus pandemic has significantly altered not just the world we live in, but the way we engage within this new world. It has been difficult and isolating to…
Before you read on, don't forget to check out Part 1 of our interview. In Part 1, Dr. Raghavan discussed his background, explained what lupus is, and introduced some of the findings…
It’s no secret that the COVID-19 pandemic significantly changed the way we interact with the world around us: in our social lives, the way we work, the way we communicate,…
When the COVID-19 pandemic began, many people wondered how it would impact them, especially if living with a rare disease or condition. As the pandemic has progressed, more research has…
According to a story from Upstate Medical University, the college's ALS Treatment and Research Center has been a certified center of excellence for research and clinical care that has helped…
According to a story from express.co.uk, the COVID-19 pandemic was a shock to the world when it first struck over two years ago, and while we have a better understanding…
Note: Research Square publishes preliminary, non-peer-reviewed scientific reports. Therefore, while the data below is interesting, it is not academically published and, as stated within the published article on Research Square: "the…
According to a recent article, the author of the novel Breaking Free, Jan Rothney, shares the connections she has discovered between chronic fatigue syndrome and long covid. Chronic Fatigue Syndrome…
Dr. Christopher Austin, a National Institute of Health Director for Transitional Sciences, spoke at last year’s virtual conference honoring Rare Disease Day. According to an article in the NIH Record, Dr.…
We have been living in the midst of a pandemic for years now, and with that has come a number of lasting effects. One of these effects, which has been…
Over the last two years, the COVID-19 pandemic has dominated the headlines. In 2021, vaccines became available to prevent severe COVID-19 infection. However, this has also brought up numerous questions…
According to a recent article, the preliminary results of a study suggest that certain oral and infusion therapies may be beneficial for those suffering from fatigue due to myalgic…
The vaccines for COVID-19 have allowed us to return to normalcy - partially, at least. Now, a UCLA study has discovered that there may be a way to curate a…
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
Even as COVID-19 cases die down, post-COVID syndrome still plagues many individuals across the world. These individuals have faced ongoing COVID-19 symptoms for more than two weeks following diagnosis. The…
Since the onset of COVID-19, there have been approximately 262M cases, and 5.2M deaths, on a worldwide scale. However, the introduction of various COVID-19 vaccines, such as those from Pfizer…
According to a recent journal, a case study found that the development of anti-glomerular basement membrane disease (anti-GBM) may be triggered by COVID-19. Anti-Glomerular Basement Membrane Disease Anti-glomerular basement membrane…
The COVID-19 vaccine was approved quickly by the FDA in an effort to fight the raging pandemic. Due to the rapid pace of these trials, a number of populations weren't…
In a recent article by Bailey Martens, she describes the struggles she and others have faced being disabled as journalists and brings light to the importance of accessibility in the…
According to a recent article, children with juvenile idiopathic arthritis experienced higher rates of joint inflammation during the COVID-19 lockdown. Juvenile Idiopathic Arthritis (JIA) Juvenile idiopathic arthritis (JIA) proves that…
According to a recent article, surveying sewage proved to be the key to helping scientists predict new virus outbreaks. How It Works It may seem crazy that your feces could…
The COVID-19 pandemic has led to many changes, disruptions, and setbacks. For rare diseases, it did delay research for new treatments. However, there were a few positive things that came…
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
A recent study conducted by the Penn State College of Medicine revealed that taking glucagon-like peptide-1 receptor (GLP-1R) agonists six months before COVID-19 infection decreases the risk of a severe…
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