Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Latest Published Research
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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Latest Published Research

The ME Association has recently published its latest weekly "research roundup" for the week of April 17th. This includes the latest research related to myalgic encephalomyelitis (ME), also known as…

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Is There Enough Education on Ehlers-Danlos Syndrome?
Hypermobility is not just a parlor-trick. For people with EDS

Is There Enough Education on Ehlers-Danlos Syndrome?

In Prohealth, Marlane Quade Cook draws on her own experience with Ehlers-Danlos syndrome to question whether the medical community has enough information and education to properly diagnose all 13 subtypes…

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Catherine’s Story: Myalgic Encephalomyelitis Makes Her Constantly Tired
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Catherine’s Story: Myalgic Encephalomyelitis Makes Her Constantly Tired

For a long time, Catherine Allen went without a diagnose to explain the myriad of symptoms that she experienced. Doctors dismissed her experiences as common feelings in teenagers, when in…

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A Patient Registry is Critical for Advancing Myalgic Encephalomyelitis Research
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A Patient Registry is Critical for Advancing Myalgic Encephalomyelitis Research

According to a story from meaction.net, Jaime Seltzer, the Director of Scientific and Medical Outreach at #MEAction, recently spoke at the Third Annual Working Group Meeting on the Molecular Basis…

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“I Am My Own Best Asset”: Learning to Be Your Own Advocate When Living with a Rare Disease or Chronic Illness

The Danger of Stereotypes There is still a huge stereotype that women are prone to "hysteria." This leads to a general distrust in women's self-reported symptoms. Physicians consciously or unconsciously…

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The Challenge: He is A Father, A Caregiver and A Scientist Trying to Save his Son and Others With ME/CFS or Chronic Fatigue Syndrome

  Ron Davis and his gene-sequencing technologies were mentioned years ago in The Atlantic alongside Elon Musk (SpaceX) and Jeff Bezos of Amazon fame. Since then, Davis has amassed over…

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Inventor of Gene Sequencing Tech Used in the Human Genome Project is Desperate to Save Son With Chronic Fatigue Syndrome
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Inventor of Gene Sequencing Tech Used in the Human Genome Project is Desperate to Save Son With Chronic Fatigue Syndrome

According to a story from F3News, 77 year old Ron Davis has lived a life highlighted by incredible scientific achievement. He leads the lab that played a critical role in…

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Study Shows New Blood Test can Accurately Diagnose Chronic Fatigue Syndrome

Chronic Fatigue Syndrome Chronic fatigue syndrome (CFS) is a rare disease which causes, most notably, persistent fatigue that doesn't improve with rest. It is also sometimes referred to as myalgic…

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Internet-Based Therapy Could Aid Chronic Fatigue Syndrome Patients
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Internet-Based Therapy Could Aid Chronic Fatigue Syndrome Patients

According to a study published by the Journal of Medical Internet research (JMIR), patients diagnosed with chronic fatigue syndrome (CFS) who are treated with cognitive behavioral therapy (CBT) delivered over…

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Chronic Fatigue Syndrome: Debates on Exercise and the Importance of the Patient Voice

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) are interchangeable titles used to describe the same illness. Sometimes this illness is simply referred to as ME/CFS.…

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Parliamentary Debate Highlights Continued Controversy and Misinformation Surrounding CFS/ME

According to a story from The ME Association, a recent debate that came to the floor of the UK parliament highlights the misinformation and deficits in care surrounding children with…

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After Dealing With Chronic Fatigue Syndrome for Years, This Patient is Giving Back
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After Dealing With Chronic Fatigue Syndrome for Years, This Patient is Giving Back

According to a story from gazettelive.co.uk, Jenni Mawson, who is currently 19 years old, has faced a years long struggle with chronic fatigue syndrome, which is also known as myalgic…

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Sexism and Misdiagnosis Led to Years of Suffering for This Chronic Fatigue Syndrome Patient
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Sexism and Misdiagnosis Led to Years of Suffering for This Chronic Fatigue Syndrome Patient

According to a story from Cosmopolitan, a young woman who we will call Courtney (real name changed for privacy) was diagnosed with chronic fatigue syndrome. However, this diagnosis only occurred…

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An Innovative UK Charity Helps a Woman With Chronic Fatigue Syndrome get Employed for the First Time
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An Innovative UK Charity Helps a Woman With Chronic Fatigue Syndrome get Employed for the First Time

According to a story from Able Magazine, 37 year old Victoria Clutton recently got her first job thanks to the efforts of the UK nonprofit organization ASTRiiD (Available Skills for Training,…

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Afflicted Series on Netflix Misses Opportunity to Spread Awareness About Rare Disease
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Afflicted Series on Netflix Misses Opportunity to Spread Awareness About Rare Disease

  There is a new series on Netflix called “Afflicted.” It chronicles the stories of seven people with chronic rare diseases and their struggle to cope with symptoms as they…

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Clinical Trial For Experimental Chronic Fatigue Syndrome Treatment is Set to Begin

According to a story from healthrising.org, the pharmaceutical company Cortene has been in the process of developing a treatment for chronic fatigue syndrome, and a clinical trial to test the…

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The State of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Research in 2018
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The State of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Research in 2018

Myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) has been a controversial condition ever since it was first diagnosed and recognized. Some uninformed doctors still believe that the syndrome is a psychological…

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