No Link Between Human Papillomavirus Vaccine and Autonomic Dysfunction Syndromes
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No Link Between Human Papillomavirus Vaccine and Autonomic Dysfunction Syndromes

by Lauren Taylor from In The Cloud Copy The human papillomavirus (HPV) vaccine has been being administered to teens and young adults worldwide for over a decade now. It has…

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Editor’s Choice: Can Machine Learning Help Rare Patients Get Diagnosed and Treated Faster?

Happy Friday! October is Dysautonomia Awareness Month. Dysautonomia is a collection of conditions that affect the autonomic nervous system. This can lead to a loss of control of the body's…

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New NIH Study Explores PEM Symptoms in ME/CFS
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New NIH Study Explores PEM Symptoms in ME/CFS

  For patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), post-exertional malaise (PEM) can be extremely debilitating and disruptive. PEM occurs when symptoms worsen or become more severe within 12-48 hours…

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Researchers Are Investigating a Possible Connection Between Chronic Fatigue Syndrome and COVID-19

Business Insider recently interviewed Marissa Oliver, a resident of New York City, who told us about the problems she has encountered during her recovery from COVID-19. Marissa, an arts manager,…

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What’s It Like to Be a Long-Hauler? An Epidemiologist Explains
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What’s It Like to Be a Long-Hauler? An Epidemiologist Explains

In early June, PatientWorthy wrote about a group of patients called "long haulers." These people, some healthy and some with pre-existing conditions, experienced extended COVID-19 symptoms, sometimes for months after…

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How Children With Disabilities Are Excluded in Schooling During the COVID-19 Pandemic
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How Children With Disabilities Are Excluded in Schooling During the COVID-19 Pandemic

An Australian royal commission is investigating claims that children with disabilities are being excluded from online learning, according to The Guardian. They are also looking into issues with the services…

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Research Has Been Accelerated to Understand the Association of Chronic Fatigue Syndrome and COVID-19

Dr. Harvey Moldofsky Harvey Moldofsky is a professor emeritus at the University of Toronto. His area of focus is SARS, and since the onset of COVID-19, he has been fully…

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How COVID-19, Chronic Fatigue Syndrome, and Guillain-Barre Syndrome are Linked
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How COVID-19, Chronic Fatigue Syndrome, and Guillain-Barre Syndrome are Linked

We have learned a lot, but still have much to learn about COVID-19. Researchers have seen a link between COVID-19 and chronic fatigue syndrome (myalgic encephalomyelitis) as well as Guillain-Barre syndrome, which…

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Studies from UCSF Offer New Perspective on Fibromyalgia and Chronic Fatigue Syndrome
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Studies from UCSF Offer New Perspective on Fibromyalgia and Chronic Fatigue Syndrome

  Researchers discovered surprising results after performing new studies of chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM). According to a report by Cort Johnson in HealthRising, the new studies give…

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You + M.E. Registry and BioBank Seeks to Build ME/CFS Resources
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You + M.E. Registry and BioBank Seeks to Build ME/CFS Resources

  In order to better understand rare conditions and diseases, researchers sometimes create registries and biobanks full of resources. Recently, the Solve ME/CFS Initiative (Solve M.E.) announced the launch of…

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Study Discovers Method to Improve Myalgic Encephalomyelitis Symptoms
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Study Discovers Method to Improve Myalgic Encephalomyelitis Symptoms

According to a study on biorxiv.org, a method called intranasal mechanical stimulation (INMES) appeared effective in reducing symptoms associated with myalgic encephalomyelitis (also called chronic fatigue syndrome) by around 30…

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COVID-19 and Myalgic Encephalomyelitis? Dr. Fauci Points Out Connections
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COVID-19 and Myalgic Encephalomyelitis? Dr. Fauci Points Out Connections

According to a story from meaction.net, Dr. Anthony Fauci was recently asked a question about what was being done to address so-called COVID-19 "long haulers," and their potential risk of…

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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Latest Published Research
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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Latest Published Research

The ME Association has recently published its latest weekly "research roundup" for the week of April 17th. This includes the latest research related to myalgic encephalomyelitis (ME), also known as…

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Is There Enough Education on Ehlers-Danlos Syndrome?
Hypermobility is not just a parlor-trick. For people with EDS

Is There Enough Education on Ehlers-Danlos Syndrome?

In Prohealth, Marlane Quade Cook draws on her own experience with Ehlers-Danlos syndrome to question whether the medical community has enough information and education to properly diagnose all 13 subtypes…

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Catherine’s Story: Myalgic Encephalomyelitis Makes Her Constantly Tired
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Catherine’s Story: Myalgic Encephalomyelitis Makes Her Constantly Tired

For a long time, Catherine Allen went without a diagnose to explain the myriad of symptoms that she experienced. Doctors dismissed her experiences as common feelings in teenagers, when in…

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A Patient Registry is Critical for Advancing Myalgic Encephalomyelitis Research
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A Patient Registry is Critical for Advancing Myalgic Encephalomyelitis Research

According to a story from meaction.net, Jaime Seltzer, the Director of Scientific and Medical Outreach at #MEAction, recently spoke at the Third Annual Working Group Meeting on the Molecular Basis…

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