Happy Friday!
Sept. 24 is FH Awareness Day. Familial hypercholesterolemia is a gentic disorder characterized by the inability of the body to remove LDL — sometimes called “bad cholesterol” — from the bloodstream. If you’re looking to help bring attention to this condition, our partners at the FH Foundation have prepared downloadable resources for you to use.
In this weeks Editor’s Choice, we have some inspiring stories of patients helping patients. First up is the story of a man who lost his leg to osteomyelitis at a young age and how he’s helping other amputees impacted by the COVID-19 pandemic. We also have some good advice from Josephine Bila, who shared her story about living with beta thalassemia on YouTube. And finally, if you or someone you know is living with tyrosinemia, you know that meals can take some extra careful planning. A live webinar on Sept. 24 can help make dinnertime a little easier. We hope you enjoy your weekend!
Don’t Miss This Virtual Event for the Tyrosinemia Community
If you or someone in your family is living with tyrosinemia, then attending this event can help you plan dietary needs.
Man Who Lost Leg to Osteomyelitis Helps Other Amputees During the Pandemic
Unfortunately, the current pandemic is making it difficult for amputees to get the support they need, but Dane Tidwell wants to help fix that.
Beta Thalassemia Patient Josephine Talks About Her Experiences
Recently, she uploaded a video to Youtube in which she talks about her life as a patient, including what it means to be transfusion-dependent.
