Komodo Health and PicnicHealth have just announced that they have partnered together in effort to combine their data and better serve patients. This data will then be made accessible to scientific researchers, academics, and biopharmaceutical agencies. It will support research in a variety of areas including many rare diseases, cancers, and chronic conditions. There is a special emphasis on hemophilia and multiple sclerosis.

The Data

This data will include real-world, de-identified patient data that is sourced from labs, electronic records, and payers. These include lab records, wearable device records, medical claims, patient-reported outcomes, and EHRs.

PicnicHealth has a database of medical records from patients, and Komodo has a Healthcare Map. The combination of these tools will better serve the medical community than each one on its own. The Healthcare Map connects individual patient experiences to large-scale health outcomes. Together, these data sources provide a more holistic view of patient experiences over time than either one on their own.

Additionally, this longitudinal data will help to follow patients for longer periods of time, even when they move providers or settings.

This type of data (real world) is incredibly important. It helps scientists to understand the safety, efficacy, and quality of treatments in a real-world context. Real-world patient data helps to overcome the limitations which exist in clinical trials. While a wonderful and vital part of research, clinical trials have their own constraints.

Clinical trials suffer from patient recruitment. Many do not have a very diverse participant pool. Additionally, time frames are limited. Real-world data does not have this time limitation.

You can read more about this new collaboration and data collection here. The hope is that it will lead to an improved understanding of patients’ needs and outcomes, leading to improved therapeutics and patient care.