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Daily Archives: November 23, 2021

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The BGTC is Working To Streamline The Development of Gene Therapies for Rare Diseases
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The BGTC is Working To Streamline The Development of Gene Therapies for Rare Diseases

  • Post author:Trudy Horsting
  • Post published:November 23, 2021
  • Post category:Rare Disease

The FDA, the NIH, 5 nonprofits, and 10 pharmaceutical companies, have formed an official partnership to accelerate gene therapy development for rare diseases. Out of 7,000 known rare diseases, just…

Continue Reading The BGTC is Working To Streamline The Development of Gene Therapies for Rare Diseases
Tips From The Vestibular Disorder Association For Handling The Holidays

Tips From The Vestibular Disorder Association For Handling The Holidays

  • Post author:Trudy Horsting
  • Post published:November 23, 2021
  • Post category:Vestibulocochlear dysfunction progressive familial

The Vestibular Disorder Association (VeDA) has just published a guide to handling the holidays when you are a vestibular patient. Holidays can be a challenge because of overstimulation, fatigue, high…

Continue Reading Tips From The Vestibular Disorder Association For Handling The Holidays
Hypothyroidism: Is Hashimoto’s Disease the Same as Hypothyroidism?
source: pixabay.com

Hypothyroidism: Is Hashimoto’s Disease the Same as Hypothyroidism?

  • Post author:Rose Duesterwald
  • Post published:November 23, 2021
  • Post category:Hashimoto's thyroiditis

  Dr. Farah Naz Khan’s recent article for GoodRx Health attempts to explain the difference between Hashimoto’s disease and hypothyroidism. The terms are used interchangeably but Dr. Khan’s article explains…

Continue Reading Hypothyroidism: Is Hashimoto’s Disease the Same as Hypothyroidism?
Thanksgiving… A Promise Kept
What are you thankful for this Thanksgiving?

Thanksgiving… A Promise Kept

  • Post author:Patient Worthy Contributor
  • Post published:November 23, 2021
  • Post category:Rare Disease

Because it is Thanksgiving, the Patient Worthy team asked me to share my thoughts on gratitude. Some among us might think it would be a daunting assignment. After all, I have a…

Continue Reading Thanksgiving… A Promise Kept

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