On January 12, 2022, posts shared on Facebook and Instagram announced the passing of 15-year-old Adalia Rose Williams. A Youtube and Facebook star, Adalia had over 16 million followers collectively. On her channels, she shared a variety of content, ranging from her time feeding kittens and makeup tutorials to health updates. You see, Adalia had been diagnosed with progeria, also known as Hutchinson-Guilford Progeria syndrome. Throughout her videos, Adalia was not only able to raise awareness about her condition, but positively impact the millions of people who connected with her.
As shared by MSN, Adalia was first diagnosed with progeria at just 3 months old. Throughout her life, she faced a variety of obstacles, including pain. The Facebook post which shares her passing acknowledges while this loss is incredibly tough for the family, they are also happy that she is no longer in pain but:
now dancing away to all the music she loves.
Adalia’s family has asked for privacy while grieving. However, they have also shared some additional information on her Instagram page. The funeral will take place on January 23, 2022 at the Weed Corley Fish Funeral Home in Austin, TX. If you would like to send flowers or condolences, you may send them directly to the funeral home. The service, per Adalia’s wishes and requests, will be streamed on her social media platforms.
Please join me in remembering Adalia’s legacy and extending love and support to her family during this time. Our heartfelt condolences are with all who loved and connected with Adalia.
Adalia’s Social Media
If you would like to remember Adalia through her social media presence, here are some options:
About Progeria
LMNA gene mutations cause progeria, an extremely rare genetic disease characterized by features that resemble premature aging. Overall, these mutations (which usually occur by chance) cause unstable cell nuclei, leading to premature aging. In many cases, diagnosis occurs around 2 years old though it can occur earlier, as in Adalia’s case. Symptoms and characteristics include:
- Failure to thrive
- Thin lips and nose
- Prominent eyes
- Aged-looking skin
- Hair loss
- Joint abnormalities
- Arterial hardening
- Heart problems
