Some Dialysis Humor, Part 3
Editor's Note: This is part 2 of a 3-part caregiver story, submitted to us by Joan Foster, who was a caregiver for her husband Charles' Chronic Kidney Disease (CKD). To…
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Some Dialysis Humor, Part 3
Megan’s Myasthenia Gravis Story: From Uncertainty to Advocacy
I was diagnosed with myasthenia gravis, or MG, in 2021 when I was in my early 20s. My journey began at a friend’s birthday party when I noticed my face…
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Megan’s Myasthenia Gravis Story: From Uncertainty to Advocacy
Some Dialysis Humor, Part 2
Editor's Note: This is part 2 of a 3-part caregiver story, submitted to us by Joan Foster, who was a caregiver for her husband Charles' Chronic Kidney Disease (CKD). To…
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Some Dialysis Humor, Part 2
Some Dialysis Humor, Part 1
Editor's Note: This is part 1 of a 3-part caregiver story, submitted to us by Joan Foster, who was a caregiver for her husband Charles' Chronic Kidney Disease (CKD). Hold…
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Some Dialysis Humor, Part 1
An Interview with Allyson, a Congenital Adrenal Hyperplasia Patient
Can you take me back to when you first became aware that you had a health condition as a child. Did you overhear the adults in your life speaking about…
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An Interview with Allyson, a Congenital Adrenal Hyperplasia Patient
Refuse to Disappear
Editor's Note: Patient Worthy is honored to share this article from our friend Abigail Johnston, originally published on her blog No Half Measures. To see the article in its original…
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Refuse to Disappear
“I Won’t Let This Define Me.”
Editor's Note: Patient Worthy is honored to share this story from our friends at Elephants & Tea, originally written by Amy Hoffmann — a survivor of triple-negative breast cancer. To…
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“I Won’t Let This Define Me.”
When Your Brain Won’t Quiet Down: A Look at Dystonia and Anxiety
One of the hardest things about living with dystonia is trying to explain what it feels like on the inside. People often see (not always for some) the muscle contractions, the pulling, the tension…
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When Your Brain Won’t Quiet Down: A Look at Dystonia and Anxiety
Les’ Journey with Cardiomyopathy
My name is Les Howard, and I am living with hypertrophic obstructive cardiomyopathy (HCM). Looking back, I believe I may have lived with HCM for most of my life without knowing…
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Les’ Journey with Cardiomyopathy
Supporting Siblings Through Loss: Remembering My Sister Heidi
Editor's Note: This article was shared with us by our friends at the Courageous Parents Network. To see the article in its original format, please click here. My older sister…
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Supporting Siblings Through Loss: Remembering My Sister Heidi
Hereditary Cancer Risk Is Harder to Detect When Family History Crosses Borders
I grew up believing health was something you could control if you were disciplined enough. In my Chinese immigrant family, my father talked constantly about how fried food and Western…
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Hereditary Cancer Risk Is Harder to Detect When Family History Crosses Borders
Aortic Valvotomy, A Widening of Heart Valves
When Seth Wharton was only one month old, doctors repaired his narrow heart valve. Then, five years later, he was referred to UAB Cardiovascular Institute for an aortic valvotomy to…
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Aortic Valvotomy, A Widening of Heart Valves
Finding Balance: David and Charice’s Journey with Parkinson’s Disease
When David Williams noticed a slight tremor in his right hand, he convinced himself it was something manageable, perhaps a compressed nerve that would eventually resolve on its own. For…
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Finding Balance: David and Charice’s Journey with Parkinson’s Disease
The Child Who Defied the Textbooks
The human body is governed by an ancient, rapid-response defense system. When an invader attacks, the innate immune system rushes to the front lines like firefighters to a blaze. But…
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The Child Who Defied the Textbooks
Dear Cancer, Three Years Have Gone By
Editor's Note: This story was originally written by Julia Alessandrine—a survivor of Hodgkins Lymphoma—and shared with us by our friends at Elephants & Tea. To see the article in its…
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Dear Cancer, Three Years Have Gone By
From Denial to Balance: My Journey with Lupus
Looking back, the signs were there long before I was diagnosed with lupus. As a child, I struggled with gastrointestinal issues and a variety of symptoms that suggested something wasn't…
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From Denial to Balance: My Journey with Lupus
Hidden for Six Weeks: How My Brain Injury Revealed Itself
To this day, I still don't remember the car accident that changed my life. It was Thursday, August 8, 2024 — a day like any other. I'd gone to BioFit,…
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Hidden for Six Weeks: How My Brain Injury Revealed Itself
International Clinical Trials Day
Editor's Note: This article was originally written and shared with us by Caleigh Haber. This day hits really close to home for me. I was born with Cystic Fibrosis in…
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International Clinical Trials Day
Beyond Your Grip
Editor's Note: This piece, originally written by Kayla DeSonier, was shared with us by our friends at Elephants & Tea. To see the article in its original format, please click…
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Beyond Your Grip
The Silent Struggle – Mental Wellness in NF2 Surgery
Editor's Note: This article was shared with us by our friends at the Cure NF2 Foundation, in honor of May 22nd being World NF2 Awareness Day. To see the article…
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The Silent Struggle – Mental Wellness in NF2 Surgery
Claudine’s Journey with Parkinson’s Disease
What is Parkinson’s Disease – known as PD for short? Parkinson’s Disease was first discovered in 1817 by a British doctor named James Parkinson. From observations, he noticed 7 people…
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Claudine’s Journey with Parkinson’s Disease
Connor’s Leukodystrophy Story
I remember the day I realized something was wrong, as clearly as if it happened this past weekend. It was a beautiful morning in June. I was taking part in…
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Connor’s Leukodystrophy Story
Fighting for Himself and Others: Wojciech’s Battle Against Crohn’s Disease and More
I am sharing my journey to give a voice to patients who suffer from extreme poly-pathology and are often left behind by the medical system. I know that my medical…
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Fighting for Himself and Others: Wojciech’s Battle Against Crohn’s Disease and More
Dismissal, Derision, and Misdiagnosis: Olga’s Lupus Story
Editor's Note: This story was originally published on Linked-In and is shared with permission by Olga Lucia Torres. In college, a clinician told me I was overdoing it. Then moved…
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Dismissal, Derision, and Misdiagnosis: Olga’s Lupus Story
The Timeless Passages of My Mind and Soul
Editor's Note: Patient Worthy is honored to share this patient story from our friends at Elephants & Tea. To see the story in its original format, please click here. This…
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The Timeless Passages of My Mind and Soul
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