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Daily Archives: January 31, 2023

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Soccer Player Marcus Stewart Shares Update on MND Diagnosis
Photo by Emilio Garcia on Unsplash

Soccer Player Marcus Stewart Shares Update on MND Diagnosis

  • Post author:Jessica Lynn
  • Post published:January 31, 2023
  • Post category:Motor neuron disease

Throughout his professional career, Marcus Stewart played in over 500 soccer games, scored more than 250 goals, and played at clubs including Ipswich Town, Sunderland, Bristol City, Exeter City, and…

Continue Reading Soccer Player Marcus Stewart Shares Update on MND Diagnosis
Help Twins Living with Hurler Syndrome!
[Source: pixabay.com]

Help Twins Living with Hurler Syndrome!

  • Post author:Jessica Lynn
  • Post published:January 31, 2023
  • Post category:Hurler Syndrome/MPS I/MPS I (Hurler Syndrome)

Right now, there are only an estimated 10 people in Ireland who have been diagnosed with a form of mucopolysaccharidosis type I (MPS I) called Hurler syndrome. This is the…

Continue Reading Help Twins Living with Hurler Syndrome!
People in Bangladesh Warned Against Raw Date Juice to Protect from Nipah Virus
https://unsplash.com/photos/vQj_hpDLcII

People in Bangladesh Warned Against Raw Date Juice to Protect from Nipah Virus

  • Post author:Jessica Lynn
  • Post published:January 31, 2023
  • Post category:Nipah Virus

Nipah virus was first discovered in 1999 following an outbreak in people and pigs in Malayasia in Singapore. Since then, the zoonotic disease has spread, causing nearly annual outbreaks in…

Continue Reading People in Bangladesh Warned Against Raw Date Juice to Protect from Nipah Virus
Woman Creates Picture Book to Support Daughter with Moebius Syndrome
AnnieSpratt / Pixabay

Woman Creates Picture Book to Support Daughter with Moebius Syndrome

  • Post author:Jessica Lynn
  • Post published:January 31, 2023
  • Post category:Moebius Syndrome

  In the past, Katie Lockwood has worked in a variety of different roles within counseling and education; she even worked as a disability advocate, championing inclusion on a larger…

Continue Reading Woman Creates Picture Book to Support Daughter with Moebius Syndrome
Woman with CVID Pays $2,466 for Evusheld
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Woman with CVID Pays $2,466 for Evusheld

  • Post author:Jessica Lynn
  • Post published:January 31, 2023
  • Post category:Common Variable Immune Deficiency/COVID-19

  The coronavirus pandemic has significantly altered not just the world we live in, but the way we engage within this new world. It has been difficult and isolating to…

Continue Reading Woman with CVID Pays $2,466 for Evusheld
A Special Treatment Helped a Girl with Neuroblastoma
source: pixabay.com

A Special Treatment Helped a Girl with Neuroblastoma

  • Post author:Jessica Lynn
  • Post published:January 31, 2023
  • Post category:Neuroblastoma

High-risk neuroblastoma can be difficult to treat in children. Some research suggests that between 40-50% of children with high-risk neuroblastoma relapse following treatment, causing poor outcomes. When Flora Gentleman was…

Continue Reading A Special Treatment Helped a Girl with Neuroblastoma

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Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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