Feb 11: Cupid’s Undie Run Raises Neurofibromatosis Funds, Awareness


If you’ve ever wanted to run around Philadelphia in your underwear for a good cause, I have an event to tell you about! As first reported by the Philly Voice, the annual Cupid’s Undie Run will be held on February 11, 2023 from 11:30am to 4pm. Participants are raising money for the Children’s Tumor Foundation to support research on neurofibromatosis, a rare genetic disorder. 

The Cupid’s Undie Run page explains: 

Thousands of undie runners in cities all across the U.S. come together, whether it be in-person or virtually, to support those affected by NF, a genetic disorder that causes tumors to grow on nerves throughout the body and affects 1 in every 3,000 births. Cupid’s Undie Run kicks off with drinking and dancing, then we jog it out with a mile(ish) run and end it all with an epic dance party!

In Philadelphia, the run will begin and end at Xfinity Live!, located at 1100 Pattison Avenue. Following the race, the team which raises the most money will be celebrated at a party at Xfinity Live! 

Registration for Cupid’s Undie Run is $40. If you are interested in registering or learning more, you may do so here

Neurofibromatosis: An Overview

As described above, neurofibromatosis (NF) is a rare genetic disorder which affects the nervous system. NF causes tumors—which are typically benign—to form on healthy nerve tissue. There are three main forms: type 1 (NF1), type 2 (NF2), and schwannomatosis. The latter is the rarest form. Each form results from specific gene mutations: NF1, NF2, or SMARCB1. 

Symptoms also differ between types. For example, NF1 can cause bone deformities, learning disabilities, macrocephaly, short stature, neurofibromas, tiny bumps on the iris of the eyes, and flat, light brown spots on the skin. Symptoms may appear at birth or manifest in childhood. NF2 symptoms typically manifest in teen years. These can include hearing loss, tinnitus, poor balance, and headaches. Finally, schwannomatosis may cause muscle loss, numbness and weakness, tumors on the skull and peripheral nerves, and intense pain. 

No cure exists for neurofibromatosis. Treatment options can include cochlear implants, auditory brainstem implants, surgery, and stereotactic radiosurgery.

Jessica Lynn

Jessica Lynn

Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.

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