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Daily Archives: June 8, 2023

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NIH Gives $2.5M Grant to Rensselaer Researcher to Study Stargardt Disease
source: pixabay.com

NIH Gives $2.5M Grant to Rensselaer Researcher to Study Stargardt Disease

  • Post author:Jessica Lynn
  • Post published:June 8, 2023
  • Post category:Stargardt Disease

At the very top of the Rensselaer Polytechnic Institute's website reads a bold statement and call to action: "Why not change the world?" As one of the United States' most…

Continue Reading NIH Gives $2.5M Grant to Rensselaer Researcher to Study Stargardt Disease
ASCO 2023: Copanlisib Improves Follicular Lymphoma Survival
source: pixabay.com

ASCO 2023: Copanlisib Improves Follicular Lymphoma Survival

  • Post author:Jessica Lynn
  • Post published:June 8, 2023
  • Post category:Follicular lymphoma

The American Society of Clinical Oncology (ASCO) held its Annual Meeting from June 2-6, 2023. During the meeting, a variety of stakeholders discussed clinical practices, guidelines, trends, and research related…

Continue Reading ASCO 2023: Copanlisib Improves Follicular Lymphoma Survival
Celine Dion Isn’t Slowing Down Despite Stiff Person Syndrome Diagnosis

Celine Dion Isn’t Slowing Down Despite Stiff Person Syndrome Diagnosis

  • Post author:Rose Duesterwald
  • Post published:June 8, 2023
  • Post category:Stiff Person Syndrome/Stiff-Person Syndrome

  Céline Dion’s new milestone is her first-ever film, Love Again, which she stars in while living with a rare disease called stiff person syndrome. Céline expressed her wishes that…

Continue Reading Celine Dion Isn’t Slowing Down Despite Stiff Person Syndrome Diagnosis
Raising Creutzfeldt-Jakob Disease Awareness: Jay and Carol’s Story
source: pixabay.com

Raising Creutzfeldt-Jakob Disease Awareness: Jay and Carol’s Story

  • Post author:Jessica Lynn
  • Post published:June 8, 2023
  • Post category:Creutzfeldt-Jakob disease

  We all dream about finding the absolute love of our life: the person that makes us feel warm and supported, the one we can't imagine our world without. For…

Continue Reading Raising Creutzfeldt-Jakob Disease Awareness: Jay and Carol’s Story
Interim Data Available on mRNA-3927 for Propionic Acidemia
Found on: Unsplash

Interim Data Available on mRNA-3927 for Propionic Acidemia

  • Post author:Jessica Lynn
  • Post published:June 8, 2023
  • Post category:Propionic Acidemia

  Children born with propionic acidemia require life-long treatment and care; without it, this disorder can lead to coma or even death. While there are supportive treatment options, no current…

Continue Reading Interim Data Available on mRNA-3927 for Propionic Acidemia
Updated Interim Analysis of AIR Trial Shows C21 Promise for IPF
source: shutterstock.com

Updated Interim Analysis of AIR Trial Shows C21 Promise for IPF

  • Post author:Jessica Lynn
  • Post published:June 8, 2023
  • Post category:Idiopathic Pulmonary Fibrosis

  Currently, there are two FDA-approved treatments for people living with idiopathic pulmonary fibrosis (IPF): Ofev (nintedanib) and Esbriet (pirfenidone). While these therapies are effective in improving lung function, they…

Continue Reading Updated Interim Analysis of AIR Trial Shows C21 Promise for IPF
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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