Stem Cells Could Cure the Most Common Cause of Irreversible Blindness 
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Stem Cells Could Cure the Most Common Cause of Irreversible Blindness 

As reported in Medical Xpress; Fight for Sight, a charity in the UK dedicated to vision, has an exciting announcement for people with macular diseases: they have just granted funding…

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Experimental Stargardt Disease Treatment Earns Orphan Drug and Rare Pediatric Disease Designations
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Experimental Stargardt Disease Treatment Earns Orphan Drug and Rare Pediatric Disease Designations

According to a story from PR Newswire, the biopharmaceutical company reVision Therapeutics, Inc. has just announced that its experimental therapy REV-0100 has received both Rare Pediatric Disease designation and Orphan…

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Six Grants From the FDA Will Help Fund Critical Rare Disease Clinical Trials
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Six Grants From the FDA Will Help Fund Critical Rare Disease Clinical Trials

According to a story from BioSpace, the US Food and Drug Administration (FDA) recently announced that it has awarded grant funding that will go towards six clinical trials that will…

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The FDA Has Provided 16 Million Dollars to Scientists to Continue Rare Disease Research During the Pandemic
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The FDA Has Provided 16 Million Dollars to Scientists to Continue Rare Disease Research During the Pandemic

 The United States FDA has just announced that they will be providing  6 new grants, which are worth 16 million dollars for rare disease research. These grants will last a…

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Cornell and reVision Therapeutics Will Work Together to Develop Stargardt Disease Treatment
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Cornell and reVision Therapeutics Will Work Together to Develop Stargardt Disease Treatment

Cornell University and reVision Therapeutics have come together through a licensing agreement to develop a treatment for Stargardt disease, according to BioSpace. They will be working on and commercializing Cornell's…

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Visually Impaired and Academically Driven? Canada has a New Scholarship for You
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Visually Impaired and Academically Driven? Canada has a New Scholarship for You

As reported in Globe News Wire, amidst a difficult time for rare disease patients as the medical world’s refocuses on the coronavirus, a new scholarship has been announced that could…

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LEGO to Introduce Braille Bricks for Children who are Blind! Coming to Stores in 2020

The Importance of Braille For any child with a rare disease that leads to blindness or visual impairment such as Stargardt disease, Usher Syndrome, Alström syndrome, or Retinal Blindness life…

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Learn About These Rare Eye Diseases to Honor Healthy Vision Month!

May is Healthy Vision Month! Rare disease or not, maintaining healthy eye health should be a priority for all of us. The National Institute of Health has resources for not…

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Study Indicates Need for More Ocular Geneticists to Reduce Misdiagnosis of Stargardt Disease

The longer patients live without a diagnosis, the longer they are living without the proper care and the proper treatment. The problem is twofold when a patient is diagnosed incorrectly.…

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The FDA has Awarded Over $18 Million for Rare Disease Research
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The FDA has Awarded Over $18 Million for Rare Disease Research

The United States Food and Drug Administration has awarded twelve research grants worth a total of over $18 million for research into rare diseases. For more information about this news,…

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This Company is Working on Treatment for Rare Retinal Diseases
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This Company is Working on Treatment for Rare Retinal Diseases

According to a story from Eye on the Cure, the biopharmaceutical company Ophthotech is hard at work researching and developing gene therapy solutions for a variety of rare retinal conditions.…

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A Potential Treatment For Stargardt Disease Granted Rare Pediatric Disease Designation
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A Potential Treatment For Stargardt Disease Granted Rare Pediatric Disease Designation

The United States Food and Drug Administration has awarded Rare Paediatric Disease Designation to an experimental drug for the treatment of Stargardt disease. For more information, you can find the…

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New Collaboration Will Test Experimental Clinical Trial Designs for Stargardt Disease Drugs
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New Collaboration Will Test Experimental Clinical Trial Designs for Stargardt Disease Drugs

According to a story from pharmavoice.com, a new partnership between the biotechnology company Vitrisa Therapeutics and the Foundation Fighting Blindness Clinical Research Institute (FFB-CRI) is in the works in order…

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Patient Enrollment Has Begun For A Trial Testing A Treatment For Stargardt Disease
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Patient Enrollment Has Begun For A Trial Testing A Treatment For Stargardt Disease

According to an article from bioportfolio.com, the pharmaceutical company Ophthotech announced that the first of its patients are being enrolled in its Phase 2b clinical trial. This trial is meant…

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