Mother With Rare Stargardt Disease Gets Glasses and Sees Her Baby Daughter Clearly for The First Time

According to a recent article, a mother was able to see her baby daughter clearly after being diagnosed with the rare Stargardt disease. Stargardt Disease Stargardt disease is an inherited…

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New Collaboration to Develop REV-0100 for Stargardt Disease
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New Collaboration to Develop REV-0100 for Stargardt Disease

Sometimes, companies work together to develop the best therapeutic options for patients. According to Optical Prism, biopharmaceutical company reVision Therapeutics, Inc. and specialty pharmaceutical company Aequus Pharmaceuticals Inc. recently joined…

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Stem Cells Could Cure the Most Common Cause of Irreversible Blindness 
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Stem Cells Could Cure the Most Common Cause of Irreversible Blindness 

As reported in Medical Xpress; Fight for Sight, a charity in the UK dedicated to vision, has an exciting announcement for people with macular diseases: they have just granted funding…

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Experimental Stargardt Disease Treatment Earns Orphan Drug and Rare Pediatric Disease Designations
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Experimental Stargardt Disease Treatment Earns Orphan Drug and Rare Pediatric Disease Designations

According to a story from PR Newswire, the biopharmaceutical company reVision Therapeutics, Inc. has just announced that its experimental therapy REV-0100 has received both Rare Pediatric Disease designation and Orphan…

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Six Grants From the FDA Will Help Fund Critical Rare Disease Clinical Trials
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Six Grants From the FDA Will Help Fund Critical Rare Disease Clinical Trials

According to a story from BioSpace, the US Food and Drug Administration (FDA) recently announced that it has awarded grant funding that will go towards six clinical trials that will…

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The FDA Has Provided 16 Million Dollars to Scientists to Continue Rare Disease Research During the Pandemic
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The FDA Has Provided 16 Million Dollars to Scientists to Continue Rare Disease Research During the Pandemic

 The United States FDA has just announced that they will be providing  6 new grants, which are worth 16 million dollars for rare disease research. These grants will last a…

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Cornell and reVision Therapeutics Will Work Together to Develop Stargardt Disease Treatment
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Cornell and reVision Therapeutics Will Work Together to Develop Stargardt Disease Treatment

Cornell University and reVision Therapeutics have come together through a licensing agreement to develop a treatment for Stargardt disease, according to BioSpace. They will be working on and commercializing Cornell's…

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Visually Impaired and Academically Driven? Canada has a New Scholarship for You
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Visually Impaired and Academically Driven? Canada has a New Scholarship for You

As reported in Globe News Wire, amidst a difficult time for rare disease patients as the medical world’s refocuses on the coronavirus, a new scholarship has been announced that could…

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LEGO to Introduce Braille Bricks for Children who are Blind! Coming to Stores in 2020

The Importance of Braille For any child with a rare disease that leads to blindness or visual impairment such as Stargardt disease, Usher Syndrome, Alström syndrome, or Retinal Blindness life…

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Learn About These Rare Eye Diseases to Honor Healthy Vision Month!

May is Healthy Vision Month! Rare disease or not, maintaining healthy eye health should be a priority for all of us. The National Institute of Health has resources for not…

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The FDA has Awarded Over $18 Million for Rare Disease Research
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The FDA has Awarded Over $18 Million for Rare Disease Research

The United States Food and Drug Administration has awarded twelve research grants worth a total of over $18 million for research into rare diseases. For more information about this news,…

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