The Dystonia Diagnosis and Prognosis
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The Dystonia Diagnosis and Prognosis

“You have dystonia” are three words that can be very confusing and frightening. Receiving the news that you have any chronic condition can bring out a lot of emotions. People…

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AbbVie Releases Positive Topline Results from Upadacitinib Study for Giant Cell Arteritis

RINVOQ (upadacitinib) is a Janus Kinase inhibitor that is currently approved to treat a variety of conditions: moderate to severe atopic dermatitis, active psoriatis arthritis, moderate to severe rheumatoid arthritis,…

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Rare Community Profiles: How Her Daughter’s MCTD Led Ronda to Help Families Navigate Rare Disease Diagnoses
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Rare Community Profiles: How Her Daughter’s MCTD Led Ronda to Help Families Navigate Rare Disease Diagnoses

  Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

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