New Podcast Episode: 50 Years of Supporting the TSC Community, feat. TSC Alliance President and CEO Kari Rosbeck

Patient Worthy’s award-winning podcast “Wait, How Do You Spell That? A Rare Disease Podcast” is back with a new episode. This week, Colby is sitting down with Kari Rosbeck, the president and CEO of the TSC Alliance. That’s a nonprofit dedicated to supporting people living with tuberous sclerosis complex and also driving research into promising treatment, among many other things. The TSC Alliance is also celebrating its 50th anniversary this year!

Connect with the TSC Alliance: Website – Facebook – Instagram – YouTube – TikTok – LinkedIn – Threads – Inspire

Check out the episode below:

If you want to save this one for later, you can also listen to the episode at this link. Or, you can find the episode on Apple Podcasts, Google Podcasts, Spotify and Amazon. You can also now find our podcast over at the Patient Worthy YouTube channel. Subscribe today!

Editor’s Note: Chronic conditions and rare diseases don’t discriminate, Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a journey to share, click here to learn more about how your voice can help spread awareness and inspire individuals from all walks of life.


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