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Daily Archives: June 20, 2025

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Collaboration Drives Progress: Accelerating Innovation and Access in Rare Disease Treatments

Collaboration Drives Progress: Accelerating Innovation and Access in Rare Disease Treatments

  • Post author:Bree Clare
  • Post published:June 20, 2025
  • Post category:Rare Disease

A recent article from PMLiVE underscores the critical role of collaboration in advancing innovation and improving access to treatments for rare diseases. With over 7,000 rare diseases affecting millions of…

Continue Reading Collaboration Drives Progress: Accelerating Innovation and Access in Rare Disease Treatments
Hyderabad Doctor Sheds Light on Rare Fainting Disorder Affecting South Indian Children

Hyderabad Doctor Sheds Light on Rare Fainting Disorder Affecting South Indian Children

  • Post author:Bree Clare
  • Post published:June 20, 2025
  • Post category:Rare Disease

A recent article from The Economic Times spotlights the intriguing case of a young boy from South India who repeatedly fainted during baths—a perplexing pattern that led to the identification…

Continue Reading Hyderabad Doctor Sheds Light on Rare Fainting Disorder Affecting South Indian Children
How Cristiano Ronaldo’s Discarded Armband Became a Lifesaver for a Child With a Rare Disease

How Cristiano Ronaldo’s Discarded Armband Became a Lifesaver for a Child With a Rare Disease

  • Post author:Bree Clare
  • Post published:June 20, 2025
  • Post category:Spinal Muscular Atrophy

A remarkable story shared by Sportskeeda illustrates how a moment of frustration on the football field turned into hope for a family in need. In March 2021, after a controversial…

Continue Reading How Cristiano Ronaldo’s Discarded Armband Became a Lifesaver for a Child With a Rare Disease
The Strength of a Single Mother: Dominique’s Breast Cancer Story

The Strength of a Single Mother: Dominique’s Breast Cancer Story

  • Post author:Patient Worthy Contributor
  • Post published:June 20, 2025
  • Post category:Triple-negative breast cancer

Written When Diagnosed On January 15th, 2024 my life changed forever. I felt my right breast turn completely solid. I knew something wasn’t right, so I went to my doctor.…

Continue Reading The Strength of a Single Mother: Dominique’s Breast Cancer Story

Featured


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Metastatic Breast Cancer: Navigating Grief


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Rethinking What It Means to Live With Acromegaly


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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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