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Daily Archives: June 23, 2025

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Defying the Odds: Shu Hua’s Inspiring Journey with ALS & MND

Defying the Odds: Shu Hua’s Inspiring Journey with ALS & MND

  • Post author:Bree Clare
  • Post published:June 23, 2025
  • Post category:Amyotrophic Lateral Sclerosis

A recent article from Free Malaysia Today tells the remarkable story of Shu Hua, a woman who has not only surpassed a dire prognosis but continues to inspire others with…

Continue Reading Defying the Odds: Shu Hua’s Inspiring Journey with ALS & MND
“Wait, How Do You Spell That?”: Amplifying Rare Disease Voices Through Podcasting

“Wait, How Do You Spell That?”: Amplifying Rare Disease Voices Through Podcasting

  • Post author:Bree Clare
  • Post published:June 23, 2025
  • Post category:Rare Disease

In the vast world of podcasts, “Wait, How Do You Spell That?” stands out as a beacon for patients, families, and advocates navigating the complex, often isolating journey of rare…

Continue Reading “Wait, How Do You Spell That?”: Amplifying Rare Disease Voices Through Podcasting
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
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