Patient Worthy is excited to share our most recent episode of our podcast Wait, How Do You Spell That? featuring Lisa Batista. Lisa shares her story with us of living with Spinal Muscular Atrophy, or SMA. SMA is a rare, genetic disorder that is categorized as weakness and disintegration of muscles due to the loss of neurons in the spinal cord that affects the control of muscle moment and gradually causes increased weakness and loss of muscle function.
In her book, Lisa shares her extraordinary journey—one marked not only by the physical realities of SMA, but also by the misunderstandings she faced from those around her. Often dismissed or accused of laziness, Lisa endured a life shaped by both her diagnosis and the abuse and misfortune that came with not being believed. Despite her muscles growing weaker, Lisa found a path to strength and survival, ultimately rising above the obstacles she faced.
To listen to Lisa’s incredible story, please click here.
To get your copy of Lisa’s book:
- Amazon – Amazon.com : falling a journey of strength
- Barnes & Noble – falling: the journey of strength, survival and rising | Barnes & Noble®
- Lisa’s Website: Falling – A Journey of Strength, Survival and Rising
