Happy April!
We hope everyone’s month is going well! This week, we’re highlighting two patient stories and two research stories. First, we have the story of Carolyn, a pemphigus patient and advocate, followed by reflections from PW contributor Denise. After that, we have a piece on personalized medicine and what a twin study revealed about autoimmune diseases.
Sit back and enjoy this week’s Editor’s Choice.
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Carolyn’s Story -Pemphigoid Awareness at DNA 2019
Pemphigoid patients typically see many doctors before finding answers. Carolyn saw two dozen. She shared her story of resilience and hope with a rare audience.
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Rare Disease Families Have Extensive Experience in “Letting Go”
Denise Crompton shares insight into the emotions that many parents of children with rare diseases know too well– the journey of letting go.
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Personalized Medicine Could be Improved if We Stop Investigating Genes in Isolation
Personalized medicine is an exciting word in the medical community– but what if there was a way researchers could approach it better?
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Researchers in Sweden Studied 116,330 Twins and This is What They Discovered About Autoimmune Diseases
What causes autoimmune disease? How do genes play a role? A twin study sheds light on these questions.
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