Editor’s Choice: A Happy Story, a Mom Warrior, and Accessible Masks

Happy day 134 of quarantine!

Today, we’re highlight four articles. First, to lift your spirits, we have a story of a young boy who made a recovery from a rare disease. Next, we have the newest podcast episode featuring Bridge the Gap’s inspirational Monica Weldon. Last but not least, we have resources to create accessible masks!
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“Back at 100%”: A Young Hockey Player’s Recovery from Kawasaki Disease
Danger?

 

A young boy recovers from a rare disease and is back to pursuing his passions.[one_half]

 

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When your son has the sixth SYNGAP1 diagnosis in the world Ft. Monica Weldon from Bridge the Grap

Monica Weldon joins us to talk about her son who received an extremely rare diagnosis and how she took action to advocate for him.

 

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Accessible Masks: CCA’s Guide To Making Masks That Don’t Rest on Ears for COVID-19

 

Masks are obviously super important right now– but what if you can’t use masks that rest on ears? Children’s Craniofacial Association has some tips.


Do you have a rare disease experience of your own? Share with us here.

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