Messages of hope relate to people in different ways. One may see it as an exact description of their life at the very moment they come across it, others may think, “Why didn’t think come to me sooner!?” or “This has nothing to do with me, but let me share it with someone I know could have a use for it”.

Regardless of how much a message relates to you or not, one thing is shared across the board, life is an experience to be enjoyed and to be shared. Living with a rare disease is like rearing a baby, it takes a village, so share your experiences with the world, create awareness and don’t be shy about it. Just because you HAVE a rare illness, it certainly does not mean you are weak. You are the strongest among us and the world needs to know.