Why Every Month Should Be Ehlers-Danlos Syndrome Awareness Month

Did you ever get that weird feeling when you’ve arrived at the party, but almost all the guests have already departed?

Yes, you are definitely late, late, late. That’s how I feel about missing the fact that May was Ehlers-Danlos Syndrome Awareness Month. Usually, I’m right on top of getting the word out about any type of awareness-raising activities when a rare disease or disorder is discussed, but I missed the boat on this one.

So, to make up for that, I’m writing this post to let people know exactly what EDS is, and where you can go for support.

EDS is a disease of the connective tissue, and there are six types it can take. They are:

Click on the links above to learn more about each type. And, if you are looking for a support group, click here.

If you would like to know more about EDS, watch this wonderful (and short) video.


Erica Zahn

Erica Zahn

Erica Zahn is passionate about raising awareness of rare diseases and disorders and helping people connect with the resources that may ease their journey. Erica has been a caregiver, and is a patient, herself, so she completely relates to the rare disease community--on a deeply personal level.

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