It’s a Hunter Syndrome Pediatric Indication Swap-Meet!
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It’s a Hunter Syndrome Pediatric Indication Swap-Meet!

Okay, I’m going to be perfectly honest: I don’t quite know what to make of this. On the one hand, you have some excellent news for people living with mucopolysaccharidosis…

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A Grandfather’s Love is Helping This Girl Fight Spinal Muscular Atrophy
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A Grandfather’s Love is Helping This Girl Fight Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is caused by the loss of motor neurons in the spinal cord and the brainstem. It leads to weakness and muscle wasting that affects a baby's ability…

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Calling the Behcet’s Community! Reserve the Dates: June 23 – 25, 2017
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Calling the Behcet’s Community! Reserve the Dates: June 23 – 25, 2017

Behcet's disease falls under the umbrella of autoimmune diseases and disorders. It affects approximately 400 of 100,000 people in Turkey, and is also commonly found in the Middle East. It…

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Why Every Month Should Be Ehlers-Danlos Syndrome Awareness Month
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Why Every Month Should Be Ehlers-Danlos Syndrome Awareness Month

Did you ever get that weird feeling when you've arrived at the party, but almost all the guests have already departed? Yes, you are definitely late, late, late. That's how I feel…

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