Our wonderful partners at the Cystinosis Research Network (CRN) are providing the first series of live broadcasts from a Cystinosis conference!
Simply make sure you’re connected to the internet and click the links below for updates from experts attending the Family Conference.
“The decision to bring livestreaming to this year’s CRN Family Conference was made so that any person that touches the life of an individual with Cystinosis can see and hear the latest research and educational updates…Plus, we believe it’s kind of cool!” Jeff Larimore, CRN President
The two-day live streaming sessions are as follows:
Friday, July 14th
Use link: https://youtu.be/5qzcLdZ_rh4
10:15am – 11:15am Mountain Time
Joshua Zaritsky, M.D
Cystinosis- A Review of Old and New
Craig Langman, M.D.
State of the World of Cystinosis
Saturday, July 15th
https://youtu.be/VvUMheB5p70
10:00am- 10:20am Mountain Time
Stephanie Cherqui, Ph.D.
Stem Cell Gene Therapy for Cystinosis
10:25am – 10:45am Mountain Time
Jennifer Simpson, M.D.
Cysteamine Nanowafer: A Novel Therapy for Corneal Cystinosis
10:50am – 11:10am Mountain Time
Elena Levtchenko, M.D., Ph.D.
Using zebrafish model for studying renal disease and drug treatment in
Cystinosis
11:15am – 11:35am Mountain Time
Craig Langman, M.D.
Clinical studies with Procysbi. What did we learn and the end of an era
11:40am – 12:00pm Mountain Time
Ewa Elenberg, M.D., M.Ed.
Chronic Kidney Disease, Dialysis and Transplant Outcomes in Patients
with Cystinosis
12:05pm – 12:20pm Mountain Time
Galina Nesterova, M.D.
Rickets, Osteomalacia and Bone Deformities in Patients with Fanconi
Syndrome of Cystinosis
If there are any problems with the live stream, check your internet connection, and then try refreshing the page or logging off and then back on.
This message was brought you by Christy Greeley, Executive Director, VP Research, Cystinosis Research Network
