Happy Friday Everybody!
This week we’re spotlighting two parts of one patient story. We also have news on Alfie Evans and epilepsy research. Sit back and enjoy this week’s Editor’s Choice.
Living with Hereditary Angiodema: My Life was Changed in an Instant, Part One
One patient contributor shares the beginning of her journey with HAE.
Read about it here.
Living with Hereditary Angiodema: My Life was Changed in an Instant, Part Two
Read about the second half of our PW contributor’s HAE story.
Learn more about her story here.
Alfie Evans’s Parents Lose Legal Battle to Keep their Son on Life Support
The famous Alfie Evans case came to a resolution, which has been protested by many.
Read about it here.
Delaying Epilepsy Onset in Young Children Could Improve Other Neurological Conditions
Early treatment is essential for managing so many rare diseases– new research shows how epilepsy management can have longterm benefits. Learn more here.
