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Castleman Disease

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Quest for a Cure: A Gala for Castleman​ Disease

Quest for a Cure: A Gala for Castleman​ Disease

  • Post author:Rebekah
  • Post published:October 7, 2016
  • Post category:Castleman Disease/Rare Disease

The Castleman Disease Collaborative Network is hosting a gala next month to raise money to continue to research the causes of Castleman Disease and find the cure. Castleman is as…

Continue Reading Quest for a Cure: A Gala for Castleman​ Disease
University of Pennsylvania Football Team Kicks off Fundraising for Castleman Disease Research
source: pixabay.com

University of Pennsylvania Football Team Kicks off Fundraising for Castleman Disease Research

  • Post author:Octavia Walker
  • Post published:April 30, 2016
  • Post category:Castleman Disease/Rare Disease

His name is David Fajgenbaum. Although he is now a medical professor, his own journey with health and wellness has been a tumultuous one. His story starts with his time…

Continue Reading University of Pennsylvania Football Team Kicks off Fundraising for Castleman Disease Research
The Rarest of The Rare, Do You Know Castleman?

The Rarest of The Rare, Do You Know Castleman?

  • Post author:Erica Zahn
  • Post published:April 15, 2016
  • Post category:Castleman Disease/Rare Disease

The lymphatic system is the body's first line of defense against disease, so when lymphatic cells suddenly begin to multiply and overwhelm the immune system, it might be diagnosed as Castleman…

Continue Reading The Rarest of The Rare, Do You Know Castleman?
By Any Other Name Would Your Rare Disease Still Suck?

By Any Other Name Would Your Rare Disease Still Suck?

  • Post author:Lady Kehveen Abernathy
  • Post published:April 11, 2016
  • Post category:Castleman Disease/Familial Mediterranean Fever/Rare Disease

Never judge a book by it's cover, or a disease by it's name. Familial Mediterranean fever is not a chronic longing or fiery passion for the beaches along the coast of…

Continue Reading By Any Other Name Would Your Rare Disease Still Suck?
How Collaboration Accelerates Cures

How Collaboration Accelerates Cures

  • Post author:Kathy Devanny
  • Post published:March 23, 2016
  • Post category:Castleman Disease/Rare Disease

Dr. David Fajgenbaum was read his last rites- but he did not die, instead he turned the rare disease research model around. He is now working to expand the model…

Continue Reading How Collaboration Accelerates Cures
How One Family’s Dream Vacation Turns Into a Castleman’s Nightmare

How One Family’s Dream Vacation Turns Into a Castleman’s Nightmare

  • Post author:Ronald Ledsen
  • Post published:March 18, 2016
  • Post category:Castleman Disease/Rare Disease

When British father Matthew Parkes took his wife Pamela and daughter Sophia on an anniversary holiday to Majorca, Spain last year, he got much more than he'd ever bargained for.…

Continue Reading How One Family’s Dream Vacation Turns Into a Castleman’s Nightmare
This Amazing Doctor Is a Hero Castleman Deserves

This Amazing Doctor Is a Hero Castleman Deserves

  • Post author:Kiki Jones
  • Post published:March 16, 2016
  • Post category:Castleman Disease/Rare Disease

For many doctors, Castleman disease seems impenetrable. Not only is the disease incredibly rare (only affecting maybe 30,000 people in the United States), its innocuous smattering of symptoms are easily…

Continue Reading This Amazing Doctor Is a Hero Castleman Deserves
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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