CLOVES Syndrome Archives - Patient Worthy

Here are Handy Resources for the CLOVES Syndrome Community on Awareness Day

Post Author:Jean Martell
Post published:August 5, 2019
Post Category:CLOVES Syndrome / Rare Disease
Post Comments:0 Comments

August 3rd is CLOVES Syndrome Awareness Day! The CLOVES Syndrome Community (CSC) is an organization that "supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome" and…

Source: Pixabay

Bikers Rally To Support Child with CLOVES Syndrome

Post Author:Samuel Sachs
Post published:December 13, 2017
Post Category:CLOVES Syndrome / Rare Disease
Post Comments:0 Comments

A simple facebook post has led to a life changing event for a young boy with CLOVES Syndrome. Keep reading to find out how, or follow the original story here.…

Source: Pixabay

Giant Tumors Press into Teen’s Heart, But She Defies Expectations

Post Author:Ilana Bean
Post published:December 7, 2017
Post Category:CLOVES Syndrome / Rare Disease
Post Comments:0 Comments

Fourteen years ago, Sabrina "Bria" Baumann's mother, Sophia, saw a mass growing in a sonogram. Something was wrong. Whatever was growing was on her chest and her neck, and the…

Here are Handy Resources for the CLOVES Syndrome Community on Awareness Day

Bikers Rally To Support Child with CLOVES Syndrome

Giant Tumors Press into Teen’s Heart, But She Defies Expectations

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