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CLOVES Syndrome

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CLOVES Syndrome Awareness Day is August 3rd: Greater Awareness, Increased Action

CLOVES Syndrome Awareness Day is August 3rd: Greater Awareness, Increased Action

  • Post author:[email protected]
  • Post published:August 3, 2021
  • Post category:CLOVES Syndrome

“I’ll be honest with you, Lindsey. I had to look up your syndrome before this appointment,” the doctor bashfully admitted. “I have never seen or heard of CLOVES syndrome.” Though…

Continue Reading CLOVES Syndrome Awareness Day is August 3rd: Greater Awareness, Increased Action
Here are Handy Resources for the CLOVES Syndrome Community on Awareness Day

Here are Handy Resources for the CLOVES Syndrome Community on Awareness Day

  • Post author:Jean Martell
  • Post published:August 5, 2019
  • Post category:CLOVES Syndrome/Rare Disease

August 3rd is CLOVES Syndrome Awareness Day! The CLOVES Syndrome Community (CSC) is an organization that "supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome" and…

Continue Reading Here are Handy Resources for the CLOVES Syndrome Community on Awareness Day
Bikers Rally To Support Child with CLOVES Syndrome
Source: Pixabay

Bikers Rally To Support Child with CLOVES Syndrome

  • Post author:Samuel Sachs
  • Post published:December 13, 2017
  • Post category:CLOVES Syndrome/Rare Disease

A simple facebook post has led to a life changing event for a young boy with CLOVES Syndrome. Keep reading to find out how, or follow the original story here.…

Continue Reading Bikers Rally To Support Child with CLOVES Syndrome
Giant Tumors Press into Teen’s Heart, But She Defies Expectations
Source: Pixabay

Giant Tumors Press into Teen’s Heart, But She Defies Expectations

  • Post author:Patient Worthy Contributor
  • Post published:December 7, 2017
  • Post category:CLOVES Syndrome/Rare Disease

Fourteen years ago, Sabrina "Bria" Baumann's mother, Sophia, saw a mass growing in a sonogram. Something was wrong. Whatever was growing was on her chest and her neck, and the…

Continue Reading Giant Tumors Press into Teen’s Heart, But She Defies Expectations

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