New Publication: NCCN Guidelines for LCH, ECD, Rosai-Dorfman Disease
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New Publication: NCCN Guidelines for LCH, ECD, Rosai-Dorfman Disease

In early March 2021, the National Comprehensive Cancer Network (NCCN) shared a new set of NCCN Guidelines for Histiocytosis. Histiocytosis, or hystiocytic disorders, are a group of rare conditions characterized…

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Clinical Trial Will Test Combination Treatment for Erdheim-Chester Disease
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Clinical Trial Will Test Combination Treatment for Erdheim-Chester Disease

A new clinical trial which will test a two-part combination treatment for Erdheim-Chester disease was recently added to the clinicaltrials.gov website. This trial will be specifically for patients with BRAF…

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Targeting the Mutation, Not the Disease is Bringing Treatment to the Ultra-Rare Community
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Targeting the Mutation, Not the Disease is Bringing Treatment to the Ultra-Rare Community

The U.S. FDA just announced that it has accepted Genentech’s supplemental New Drug Application (sNDA) and has granted Priority Review for Zelboraf (vemurafenib) in patients with Erdheim-Chester disease from the…

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