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Gorlin Chaudhry Moss syndrome

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Craniofacial Syndromes Rarely Gorlin-Chaudhry-Moss Syndrome

Craniofacial Syndromes Rarely Gorlin-Chaudhry-Moss Syndrome

  • Post author:Erica Zahn
  • Post published:February 16, 2017
  • Post category:Gorlin Chaudhry Moss syndrome/Rare Disease

Gorlin-Chaudhry-Moss, or GCM, is an inherited disorder that falls under the umbrella of craniofacial syndromes. While the fetus is in utero, premature closure between bones in the skull occurs, and that…

Continue Reading Craniofacial Syndromes Rarely Gorlin-Chaudhry-Moss Syndrome
GCM and Genetic Counseling: What You Need to Know
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GCM and Genetic Counseling: What You Need to Know

  • Post author:Alisha Stone
  • Post published:January 16, 2017
  • Post category:Gorlin Chaudhry Moss syndrome/Rare Disease

If you are considering having children, it’s wise to consult with a genetic counselor for screening and testing before conception. Here’s why: there is a plethora of deadly and/or seriously…

Continue Reading GCM and Genetic Counseling: What You Need to Know
The Nasty New Year’s Surprise Awaiting U.S. PID Patients
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The Nasty New Year’s Surprise Awaiting U.S. PID Patients

  • Post author:Ronald Ledsen
  • Post published:January 12, 2017
  • Post category:Gorlin Chaudhry Moss syndrome/Timely

This past December, the United States Congress was temporarily struck by a moment of bipartisanship when it passed the 21st Century Cures Bill. The bill, which President Obama signed into…

Continue Reading The Nasty New Year’s Surprise Awaiting U.S. PID Patients
What Happens When Only Seven People in the World Have a Rare Disease?
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What Happens When Only Seven People in the World Have a Rare Disease?

  • Post author:Erica Zahn
  • Post published:November 18, 2016
  • Post category:Gorlin Chaudhry Moss syndrome/Rare Disease

Talk about rare diseases/ disorders/ conditions/ syndromes... there are only seven (SEVEN!!) documented cases of Gorlin Chaudhry Moss syndrome (GCM) in the world. All females. So, does as it come…

Continue Reading What Happens When Only Seven People in the World Have a Rare Disease?

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