Hereditary sensory and autonomic neuropathy type 3 (Familial Dysautonomia) Archives

Postural Orthostatic Tachycardia Syndrome (POTS): An Underdiagnosed Condition That Doctors Said Was All in Her Head

Post author:Rose Duesterwald
Post published:November 12, 2019
Post category:Dysautonomia Hereditary sensory and autonomic neuropathy type 3 (Familial Dysautonomia)POTS Rare Disease

About one to three million people in the United States are living with postural orthostatic tachycardia syndrome (POTS). The disease affects one in one hundred teens and is more common…

This Young Man Accurately Diagnosed His Own Disorder But Doctors Did Not Believe His Diagnosis

Post author:Rose Duesterwald
Post published:August 6, 2019
Post category:Acute cholinergic dysautonomia Congenital Adrenal Hyperplasia Dysautonomia Hereditary sensory and autonomic neuropathy type 3 (Familial Dysautonomia)

Doug Lindsay ran track in high school. According to an article published by CNN Health, Doug had big plans as a senior at Rockhurst University in Kansas City where he…

Postural Orthostatic Tachycardia Syndrome (POTS): An Underdiagnosed Condition That Doctors Said Was All in Her Head

This Young Man Accurately Diagnosed His Own Disorder But Doctors Did Not Believe His Diagnosis

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

“Shades of Psoriasis”: Plaque Psoriasis and Sharing Your Story

Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes

We Need Equity and Diversity Within Rare Disease Research

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics - Part 1

Bridging the Diversity Gap in Healthcare

Congratulations to the 2023 Recipients of the Diversity in Lupus Research Awards!

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