Kallmann Syndrome – Absent Puberty: A Rare Patient Story
Written by Neil Smith I was labelled as a "late bloomer" as a teenager. I did not start puberty at the same time as my friends. Even when I started…
Written by Neil Smith I was labelled as a "late bloomer" as a teenager. I did not start puberty at the same time as my friends. Even when I started…
Written by Neil Smith I have a rare hormonal condition called Kallmann syndrome. Its main symptom is a failure to start or fully complete puberty. It is also associated with…
The State of Rare Diseases in China The Illness Challenge Foundation (ICF) is an organization devoted to easing the burdens that rare disease patients living in China face. They accomplish this…
Kallman syndrome is a rare genetic condition that either delays puberty or stops it entirely. Its symptoms include a lack of secondary sex characteristics-- pubic hair that doesn't appear, testes…
I vividly remember being four years old and going to the doctor with my mother and sister for a very important event: my sister and I were getting two vaccinations.…
Anyone living with Kallmann syndrome (KS) faces multiple symptoms: no sense of smell delayed puberty possible infertility complications affecting the kidneys, ears, heart, eyes, and parts of the brain Patients…
Kallmann syndrome is a genetic condition caused by hypogonadotropic hypogonadism (HH), of which four separate types have been identified. People with Kallmann syndrome experience olfactory deficiencies, and puberty that is either…
Kallman syndrome is a condition in which puberty is delayed or completely absent from the individual. According to the NIH, it effects just one out of every 10,000 to 86,000…