Neurofibroma Archives - Patient Worthy

source: pixabay.com

FDA Approves a Treatment for Neurofibromatosis Type 1 for the First Time Ever

Post author:James Moore
Post published:April 15, 2020
Post category:Neurofibroma Neurofibromatosis Neurofibromatosis Type 1 Rare Disease

A press release from the US Food and Drug Administration (FDA) recently announced the approval of the drug selumetinib (marketed as Koselugo) for the treatment of patients aged two years…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

FDA Approves a Treatment for Neurofibromatosis Type 1 for the First Time Ever

Rare Disease Clinical Trials Are Essential to Help Uncover Potential Patient Solutions: Spotlight on Classic Congenital Adrenal Hyperplasia (CAH)

Make a difference, share your experiences and get paid. Opt-in & join Patient Worthy’s panel for paid opportunities such as Surveys, Market Research, Patient Advisory Panels & much more.

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

Let’s Work Together!

Keep Up to Date

Learn More

SIGN UP FOR OUR NEWSLETTER
Email Address