11/13: Indiana Blood Drive Supports Girl with Opsoclonus-Myoclonus Syndrome
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11/13: Indiana Blood Drive Supports Girl with Opsoclonus-Myoclonus Syndrome

3-year-old Ruby Ann Grimes is bubbly, happy, and loving. But each and every day, Ruby faces an ongoing battle: Opsoclonus-Myoclonus syndrome (OMS). Last January (2020), Ruby was first diagnosed with…

Continue Reading 11/13: Indiana Blood Drive Supports Girl with Opsoclonus-Myoclonus Syndrome
At Just Weeks Old, a Baby From Auckland is Diagnosed With Aicardi Syndrome and Opsoclonus Myoclonus Syndrome
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At Just Weeks Old, a Baby From Auckland is Diagnosed With Aicardi Syndrome and Opsoclonus Myoclonus Syndrome

According to a story from stuff.co.nz, a baby from Auckland has been diagnosed with two extremely rare disorders that only occur in one in every 10 million people. Her name…

Continue Reading At Just Weeks Old, a Baby From Auckland is Diagnosed With Aicardi Syndrome and Opsoclonus Myoclonus Syndrome