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Pelizaeus Merzbacher Disease

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Boy With Pelizaeus-Merzbacher Disease Swims With Dolphins
source: pixabay.com

Boy With Pelizaeus-Merzbacher Disease Swims With Dolphins

  • Post author:James Moore
  • Post published:January 2, 2018
  • Post category:Pelizaeus Merzbacher Disease/Rare Disease

Doctors told Shawn Rogers, who they had diagnosed with Pelizaeus-Merzbacher disease, that he might only have days to live. However, today he is swimming with dolphins, a dream that he…

Continue Reading Boy With Pelizaeus-Merzbacher Disease Swims With Dolphins
United Leukodystrophy Foundation Going Strong After 35 Years
Source: Pixabay

United Leukodystrophy Foundation Going Strong After 35 Years

  • Post author:Andres Rovira
  • Post published:November 9, 2017
  • Post category:Pelizaeus Merzbacher Disease

Two-year-old Clark Cutler's parents felt alone when dealing with his rare disease, until they stumbled upon the United Leukodystrophy Foundation. Clark was diagnosed with Pelizaeus-Merzbacher disease when he was just…

Continue Reading United Leukodystrophy Foundation Going Strong After 35 Years
Help Jake Get a Golden Ticket on October 7th!
Source: Pixabay

Help Jake Get a Golden Ticket on October 7th!

  • Post author:Andres Rovira
  • Post published:October 5, 2017
  • Post category:Pelizaeus Merzbacher Disease

When three-year-old Jake Burgman was born, something was wrong. Three months into his life, the Burgman's noticed that Jake was unable to lift his own head, among other developmental delays.…

Continue Reading Help Jake Get a Golden Ticket on October 7th!

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