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Phenylketonuria type 2

Home » Phenylketonuria type 2
Trying to Manage My Son’s Rare Disease, and Why Parents Need More Support
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Trying to Manage My Son’s Rare Disease, and Why Parents Need More Support

  • Post author:Patient Worthy Contributor
  • Post published:January 10, 2023
  • Post category:Phenylketonuria/Phenylketonuria type 2

Written by: Kala McWain There is no amount of time that can fully prepare you for the hard work and sacrifices it takes to be a good parent. These challenges…

Continue Reading Trying to Manage My Son’s Rare Disease, and Why Parents Need More Support
May is PKU Awareness Month: Spreading Rare Disease Awareness
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May is PKU Awareness Month: Spreading Rare Disease Awareness

  • Post author:James Moore
  • Post published:May 27, 2021
  • Post category:Phenylketonuria/Phenylketonuria type 2

The month of May is recognized as PKU Awareness Month, a time of year set aside to focus on spreading awareness about phenylketonuria (PKU) among the general public and in…

Continue Reading May is PKU Awareness Month: Spreading Rare Disease Awareness
This Mother Will Run the London Marathon for Rare Disease Awareness

This Mother Will Run the London Marathon for Rare Disease Awareness

  • Post author:Sunniva Bean
  • Post published:May 24, 2021
  • Post category:Phenylketonuria/Phenylketonuria type 2/Rare Disease/surfactant deficiency

As reported in the Northhampton Chronicle;, sometimes it's our toughest challenges that inspire us to grow taller than we thought possible and to push past our notions of our limits.…

Continue Reading This Mother Will Run the London Marathon for Rare Disease Awareness

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Lila’s Journey: Staying Positive While Living With Pediatric Low-Grade Glioma (pLGG)

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