Patient Stories: Born with Pierre Robin Sequence
Ashley O’Keefe is a proud mother of three and a nurse, so she's seen her fair share of children and health problems. So when her third child was born, she…
Ashley O’Keefe is a proud mother of three and a nurse, so she's seen her fair share of children and health problems. So when her third child was born, she…
Dr. Cory M. Resnick, Oral & Maxillofacial Surgeon at Boston Children’s Hospital and Assistant Professor at Harvard Medical School, describes the exciting progress he has made on the Prenatal Diagnosis of Pierre Robin Sequence. Interview by Philippe Pakter, chairman of Pierre Robin Europe.
Philippe Pakter’s daughter Lysiane was born on March 29th 2017 in Lyon, France. However, soon after her birth, Philippe and his partner Delphine were hit with shocking news: Lysiane was…
Rare disease families deal with a lot. The last thing they should be forced to have on their mind is how to get access to care. Unfortunately, for many parents…
Pretoria Moot Rekord recently reported on the 35th anniversary of the University of Pretoria's Facial Cleft Deformity Clinic. The clinic caters to babies and children with facial clefts, providing surgery…