Pseudoxanthoma elasticum Archives

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World Orphan Drug Congress USA 2023: Inozyme HCP and Patient Engagement Executive Discuss Importance of Technology and Partnerships in Rare Disease Diagnosis and Treatment

Post author:James Moore
Post published:June 22, 2023
Post category:ABCC6 deficiency ENPP1 Deficiency Generalized arterial calcification of infancy-1 (GACI1)Pseudoxanthoma elasticum

The World Orphan Drug Congress USA 2023 was held from May 23-25, 2023, at the Gaylord National Resort & Convention Center in National Harbor, MD. This conference is focused solely…

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Zebrafish Model Could Increase PXE Understanding

Post author:Jessica Lynn
Post published:April 12, 2021
Post category:Pseudoxanthoma elasticum

Did you know that zebrafish are often used in genetic research? Not only do they have the same major organs and tissues as humans do, but zebrafish also share a…

World Orphan Drug Congress USA 2023: Inozyme HCP and Patient Engagement Executive Discuss Importance of Technology and Partnerships in Rare Disease Diagnosis and Treatment

Zebrafish Model Could Increase PXE Understanding

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

“Shades of Psoriasis”: Plaque Psoriasis and Sharing Your Story

Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes

We Need Equity and Diversity Within Rare Disease Research

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics - Part 1

Bridging the Diversity Gap in Healthcare

Congratulations to the 2023 Recipients of the Diversity in Lupus Research Awards!

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