Quinnlyn Walters is a bright, bubbly, and active 8-year-old. She loves reading, riding horses, swimming and softball, karate, Star Wars, and spending time outside with her friends and family. But…
At four and a half years old, Tucker Lewis is thriving. He loves playing with his friends, riding his bike outside, and watching the Atlanta Braves (He's even going to…
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…
What would you do to support your child? Would you take on a daunting 100 kilometer (62 mile) run? According to the Daily Record, a mother and her friends in…
According to a story from Gurufocus, the precision medicines company IDEAYA Biosciences, Inc. and the Boston Children's Hospital have recently entered into a Sponsored Research Agreement. The arrangement will entail…
Sometimes, the only thing a rare disease needs is for technology to catch up with the times and save the day. Recently, this came in the form of three dimensional…
After the long hard fight against Sturge-Weber syndrome, 23-year-old Craig Morrison could fight no longer. He passed last Monday following complications with his rare disease. Sturge-Weber syndrome springs at birth…
Amber and Ryan Dollinger were preparing for the birth of their second son just as Hurricane Harvey was plowing toward them dead-on. They fled their Beaumont, Texas home and found…
Des Moines news anchor, Elizabeth Klinge, is receiving quite the social media buzz after posting heart-warming photos of her daughter Hanalay and her notable port-wine stain. The photos garnered a…
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