Sudden Arrhythmia Death Syndrome Archives

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Sudden Arrhythmia Death Syndromes Foundation (SADS) Educates FDA on Living with ARVC/D Through Externally-Led Patient-Focused Drug Development Meeting

Post author:Patient Worthy Contributor
Post published:August 24, 2023
Post category:Arrhythmogenic right ventricular dysplasia Sudden Arrhythmia Death Syndrome

This press release was provided by the Sudden Arrhythmia Death Syndrome Foundation (SADS), a Patient Worthy partner organization. Key facts: ● Externally-led patient-focused drug development meeting (EL-PFDD) with FDA hosted…

Gene Testing Recommended to Save Athletes from Sudden Cardiac Death

Post author:Alyssa Stevens
Post published:June 23, 2022
Post category:Long QT Syndrome Sudden Arrhythmia Death Syndrome

According to a recent article, the European Society of Cardiology has recommended that athletes undergo gene testing to prevent sudden cardiac death from exercise. Gene Testing Lethal variants can be…

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Family Calls for Mobile Cardiac Screenings After Son’s Death

Post author:Jessica Lynn
Post published:October 28, 2021
Post category:Sudden Arrhythmia Death Syndrome

In 2019, Nathan James Bryan was 31 years old. He enjoyed drinking beer with his friends, working out, and spending time with his family. In fact, he had been staying…

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Patient Story: Overcoming Sudden Arrhythmic Death Syndrome

Post author:Kendall Mason
Post published:August 2, 2021
Post category:Long QT Syndrome Sudden Arrhythmia Death Syndrome

Alexis Loveless is a 14-year-old from Louisville, KY who was recently diagnosed with Long QT syndrome. Now, she's doing her best to raise awareness by sharing her own story of…

Sudden Arrhythmia Death Syndromes Foundation (SADS) Educates FDA on Living with ARVC/D Through Externally-Led Patient-Focused Drug Development Meeting

Gene Testing Recommended to Save Athletes from Sudden Cardiac Death

Family Calls for Mobile Cardiac Screenings After Son’s Death

Patient Story: Overcoming Sudden Arrhythmic Death Syndrome

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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We Need Equity and Diversity Within Rare Disease Research

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics - Part 1

Bridging the Diversity Gap in Healthcare

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