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Syringomyelia

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Chiari Malformation: Community Brings Christmas Parade to 7-Year-Old’s Door 
source: shutterstock.com

Chiari Malformation: Community Brings Christmas Parade to 7-Year-Old’s Door 

  • Post author:James Moore
  • Post published:December 25, 2023
  • Post category:Chiari Malformation/Syringomyelia

By Danielle Bradshaw from In the Cloud Copy For the streets of downtown Wylie, Texas, Christmas came twice. It was only a week after the town threw their yearly Christmas…

Continue Reading Chiari Malformation: Community Brings Christmas Parade to 7-Year-Old’s Door 
Rare Classroom: Syringomelia
source: shutterstock

Rare Classroom: Syringomelia

  • Post author:James Moore
  • Post published:January 20, 2023
  • Post category:Syringomelia hyperkeratosis/Syringomyelia

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…

Continue Reading Rare Classroom: Syringomelia
28-Year-Old Working to Raise Syringomyelia Awareness
source: pixabay.com

28-Year-Old Working to Raise Syringomyelia Awareness

  • Post author:Jessica Lynn
  • Post published:June 20, 2022
  • Post category:Syringomyelia

When Alicia McLeod entered her 20s, she began noticing that she was showing a few concerning symptoms. Eventually, Alicia visited the doctors, where she was diagnosed with syringomyelia. According to…

Continue Reading 28-Year-Old Working to Raise Syringomyelia Awareness
Raffle Benefits Teen with Syringomyelia
TBIT / Pixabay

Raffle Benefits Teen with Syringomyelia

  • Post author:Jessica Lynn
  • Post published:September 29, 2021
  • Post category:Chiari Malformation/Syringomyelia

I don’t know about you, but I always get incredibly happy when I see stories about a community rallying to support one of its own members. For example, those in…

Continue Reading Raffle Benefits Teen with Syringomyelia
Community Brings Christmas Parade to 7-Year-Old Girl’s Door 
Source: Pixabay

Community Brings Christmas Parade to 7-Year-Old Girl’s Door 

  • Post author:Patient Worthy Contributor
  • Post published:December 18, 2020
  • Post category:Chiari Malformation/Rare Disease/Syringomyelia

By Danielle Bradshaw from In the Cloud Copy For the streets of downtown Wylie, Texas, Christmas came twice. It was only a week after the town threw their yearly Christmas…

Continue Reading Community Brings Christmas Parade to 7-Year-Old Girl’s Door 
Teenage Dancer Affected by Chiari Malformation
source: pixabay.com

Teenage Dancer Affected by Chiari Malformation

  • Post author:Patient Worthy Contributor
  • Post published:September 4, 2020
  • Post category:Chiari Malformation/Syringomyelia

by Danielle Bradshaw from In The Cloud Copy Elaina Pechota loves to dance. Back in 2018, however, the teen had a fall during one of her classes, and her entire…

Continue Reading Teenage Dancer Affected by Chiari Malformation
Chiari Malformation Patient to Shave Her Head to Say “Thank You” to Hospital
source: pixabay.com

Chiari Malformation Patient to Shave Her Head to Say “Thank You” to Hospital

  • Post author:Patient Worthy Contributor
  • Post published:March 24, 2020
  • Post category:Chiari Malformation/Syringomyelia

By Jodee Redmond from In The Cloud Copy Frankie Hewitson spent more than her fair share of time in the hospital during her childhood. The 27-year-old was diagnosed with three…

Continue Reading Chiari Malformation Patient to Shave Her Head to Say “Thank You” to Hospital
Mother Fights For Life-Changing Surgery For Her Son With Scoliosis
Source: Pixabay

Mother Fights For Life-Changing Surgery For Her Son With Scoliosis

  • Post author:Meagan Fulps
  • Post published:February 13, 2018
  • Post category:Chiari Malformation/Syringomyelia

Tyler Chambers, 9-years-old, suffers from scoliosis, with a 65 degree bent spine. His mother is fighting to get him the surgery he needs to rid away his intensifying pain, reports…

Continue Reading Mother Fights For Life-Changing Surgery For Her Son With Scoliosis

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