Tuberous sclerosis- type 2 Archives

“We May Bend, But Never Break”: How the Chandler Family Faces a Tuberous Sclerosis Complex (TSC) Diagnosis with Resilience

Post author:Jessica Lynn
Post published:February 14, 2023
Post category:Tuberous Sclerosis Complex Tuberous sclerosis- type 2

Gavin Chandler loves toy cars, watching Big City Greens, fans, the “Baby Shark” song, and anything that lights up or makes noise—including, his mother Jessica shares, the vacuum cleaner. He…

source: shutterstock

Rare Classroom: Tuberous Sclerosis Complex

Post author:James Moore
Post published:March 4, 2022
Post category:Tuberous Sclerosis Tuberous Sclerosis Complex Tuberous sclerosis- type 2

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…

“We May Bend, But Never Break”: How the Chandler Family Faces a Tuberous Sclerosis Complex (TSC) Diagnosis with Resilience

Rare Classroom: Tuberous Sclerosis Complex

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

“Shades of Psoriasis”: Plaque Psoriasis and Sharing Your Story

Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes

We Need Equity and Diversity Within Rare Disease Research

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics - Part 1

Bridging the Diversity Gap in Healthcare

Congratulations to the 2023 Recipients of the Diversity in Lupus Research Awards!

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

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