2022 FSHD Connect

June 18-19, 2022

Orlando, FL

An educated, empowered, and connected community can achieve extraordinary things! Every two years, the FSHD Connect conference brings together hundreds of patients, family members, researchers, and health experts for a day-and-a-half of immersive learning and community building. Our 2022 meeting will feature talks by thought leaders on the latest in healthcare, therapy development, clinical trials, and firing up the FSHD community to take on the challenges of living well and pushing for effective therapies. Breakout sessions will help you live your best life, with discussion about health, diet, exercise and physical therapy, dealing with practical and emotional transitions, caregiving, the science of FSHD, and much more.

This event will take place both in-person and virtually.

Registration for the virtual event is still available. Click here to get started.