- Rare Disease News
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KIF1A.ORG’s KIF1A Family & Scientific Conference
August 16, 2019 - August 17, 2019
The KIF1A Family & Scientific Conference
KIF1A.ORG is putting together its very first KIF1A focused family and science conference. This conference will be an unprecedented opportunity for KIF1A associated neurological disorder patients from around the world to come together and build community, as well as learn about the latest developments in KIF1A research and treatment.
KIF1A.ORG is currently running a fundraiser intended to help patient families travel to the conference. If you are interested in contributing, click here.