Rare Community Profiles: Superhero Liam Battles KAND with the Help of Shriners Children’s
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Rare Community Profiles: Superhero Liam Battles KAND with the Help of Shriners Children’s

  Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

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Ovid Therapeutics and Columbia University are Working on a Treatment for KIF1A Associated Neurological Disorder

According to a story from GlobeNewswire, the biopharmaceutical company Ovid Therapeutics Inc. and Columbia University have recently entered a collaborative partnership that will be focused on developing gene-based treatments for…

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KIF1A.ORG’s KIF1A Family & Scientific Conference

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The KIF1A Family & Scientific Conference KIF1A.ORG is putting together its very first KIF1A focused family and science conference. This conference will be an unprecedented opportunity for KIF1A associated neurological…

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